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A MyEpilepsyTeam Member asked a question 💭
Conroe, TX

Everyone is different and just wanted to hear your side.
The hardest part for me was not being able to drive and not being able to work. Wbu?

May 10
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Answer Summary

Members opened up about what bothered them most after being diagnosed with epilepsy, with loss of independence coming up again and again,... Read more

Members opened up about what bothered them most after being diagnosed with epilepsy, with loss of independence coming up again and again, especially around not being able to drive or work. Several members described how epilepsy shaped their entire lives, from missing out on dream careers and limiting job options to struggling to explain the condition to family and the public. A recurring theme was the fear of the unknown, including not understanding why seizures started, not knowing triggers, and the emotional weight of navigating life with an unpredictable condition, though many shared a quiet resilience and determination to keep going.

A MyEpilepsyTeam Member

Being abandoned by my Mum when I be born ., she leave me and my Dad because she could not deal with both sick husband and dying baby .. my Dad was very sick himself ., he ask my Uncle James ., his twin brother ., to adopt me .. then I come from Canada to Michigsn after my Dad die ., Uncle James send me to school where I meet Jen .. who become my wife when we grow up-- when I meet her ., I tell her of me ., she say she love me and will stay with me., with Jen for first time I be loved and accepted as I be ., with her I never fear dying alone in the dark again ., hugs and prayers from William and Jen💜💙🤗🤗🕊🕊

May 11 (edited)
A MyEpilepsyTeam Member

The fact that I cant work or drive and that at rhe time i got diagnosed it was rough because I had one at my high school and the nurse thought it was something else and then in class one time I had to naps because in high school they thought that it was okay

May 10
A MyEpilepsyTeam Member

Living the life of a child. I’ve battled epilepsy my whole life and haven’t moved a step forward. Doctors didn’t believe I was going to survive my tragic birth and it wouldn’t have mattered if I hadn’t

May 10
A MyEpilepsyTeam Member

I didn’t get a chance to try and go for dream career interest .

When I worked It had to be either ……..
1. close walking or biking distance from home.
2. It is near a city bus route

There were many jobs that caught my interests back in the day. But , they were located too far where I want to be able to make it on time. Or a bus stop wasn’t close to it.

May 16
A MyEpilepsyTeam Member

Not understanding anything about it or why it started at the age of 44. And being terrified of when is it going to happen again. And not knowing the cause of where it came from since I can't ask family since their all gone. So it's very scary for me

May 16

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A MyEpilepsyTeam Member asked a question 💭
Deal, UK