Susana, I was diagnosed in 2020 and am 65 now
Based on things I’ve learned here, I’m sure I went undiagnosed for a long time though
Take care
May 5 (edited)
What a wonderful question — and what a journey you've been on since 2014! You are absolutely not alone in living with epilepsy for many years at 64.
Many people live with epilepsy long-term, and plenty of MyEpilepsyTeam members are in similar situations — managing the same diagnosis over many years, adjusting medications Show Full Answer
What a wonderful question — and what a journey you've been on since 2014! You are absolutely not alone in living with epilepsy for many years at 64.
Many people live with epilepsy long-term, and plenty of MyEpilepsyTeam members are in similar situations — managing the same diagnosis over many years, adjusting medications, and finding their "new normal."
One MyEpilepsyTeam member shared: "I was diagnosed in 2008 — I was 18 years old at the time. It was the hardest transition I had to deal with in my life!" — showing just how long people carry this diagnosis. Living with epilepsy long-term often means learning what works best for you over time. Some things that many long-term members focus on include:
- Identifying personal triggers (stress is a very common one)
- Staying consistent with medications
- Building a strong support network
- Working closely with a neurologist
The community on MyEpilepsyTeam is full of people who truly understand the long road, and your positivity and gratitude are a wonderful gift to everyone around you! 💙
May 5
Diagnosed in 2018 at age 62. It definitely wasn't on my bingo card.
May 6
My diagnosis hasn’t it change Since I was 2yrs old. I’m now 51
May 5
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