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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Due to the fact my seizures have got worse lately, cause I have tempal lobe and complex partial seizures I don't pass out much .

A MyEpilepsyTeam Member asked a question 💭
Deal, UK

During having a seizure do you find it better or worse to keep your eyes open or closed
to help you get over it easier?
I am curious of what to do .

April 30
 · 
Reactions

Answer Summary

Members shared their personal experiences with whether their eyes stay open or closed during seizures, responding to a question about managing... Read more

Members shared their personal experiences with whether their eyes stay open or closed during seizures, responding to a question about managing temporal lobe and complex partial seizures. Many community members described having no awareness or control over their eyes during seizures, with several noting they were told by family or partners that their eyes were open, sometimes with eyes rolled back. A recurring theme was that those who remained partially conscious preferred keeping their eyes open to maintain awareness and balance, while others shared that seizure type, whether focal, grand mal, or nocturnal, seemed to affect what happened naturally.

A MyEpilepsyTeam Member

Thanks for your reply and Take care 🙏

June 9
A MyEpilepsyTeam Member

I couldn't tell you because my seizures just happen so I either wake up feeling like my head has been hit by a bus or I'm picking myself up off the ground

June 8
A MyEpilepsyTeam Member

You be welcome Babs .. we all be here loving you and supporting you .. hugs and prayers from us all on here .. William and Jen 💜💙🤗🕊

May 3
A MyEpilepsyTeam Member

I keep mine open now or for the last few years, I felt closing them if I was standing I'd lose my balance and fall what occurred when I was younger, Thanks for all your support 🙏.

May 3
A MyEpilepsyTeam Member

Hallo Babs .. my Jen tell me my eyes be open during daytime seizures .. with CIRE seizures my eyes be open as I be aware and awake during them .. with nocturnal seizures they be closed as I be asleep ., even when my heart stop and Jen must do CPR to restart my heart .. my eyes remain closed ., yet when heart restart I jump a bit and my eyes flash open .. then close again .. and I still be asleep throughout all this ., be totally weird to watch .. Jen take video once whilst her Mum do CPR as I want to be seeing me ., that bit when my eyes flash open is scary weird and give me chills watching it .. to think this what my Jen must see every time she do this for me makes me cry.. talk about quiet love .. this sure be ultimate example of that💜💙😭😢🕊..
William and Jen💜💙🕊

May 2

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