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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How many of you have had other symptoms that you have wondered about? 🤔

A MyEpilepsyTeam Member asked a question 💭
London, UK

Neurodivergence is an umbrella term that is used for a multitude of brain disruptions. Can you relate to any in the image? Just wanted to leave it here as epilepsy very rarely travels alone.
Talk to your epilepsy team about it or here with us.

April 29
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MyEpilepsyTeam

It's so true that epilepsy can come with a whole range of experiences that go beyond just seizures. Many people with epilepsy notice other things happening that can feel puzzling or frustrating.

Some commonly reported experiences among people with epilepsy include:

- Memory difficulties — forgetting things, or feeling like Show Full Answer

It's so true that epilepsy can come with a whole range of experiences that go beyond just seizures. Many people with epilepsy notice other things happening that can feel puzzling or frustrating.

Some commonly reported experiences among people with epilepsy include:

- Memory difficulties — forgetting things, or feeling like each seizure takes a little more memory with it
- Cognitive changes — trouble with thinking, focus, or processing information
- Mood shifts — feeling emotionally "off" before, during, or after a seizure
- Headaches — migraines are notably more common in people with epilepsy
- Fatigue — exhaustion that goes well beyond just feeling tired
- Auras — unusual sensations, emotions, or thoughts that signal a seizure may be coming As one MyEpilepsyTeam member put it, epilepsy symptoms are like an iceberg — what others see on the surface is just a fraction of what's actually going on.

Bringing these experiences up with an epilepsy specialist is always a great step. Keeping a symptom journal can also help track patterns and give your care team a clearer picture of everything going on. 💙

April 29
A MyEpilepsyTeam Member

I know my insomnia has to do with my Epillepsy

April 29
A MyEpilepsyTeam Member

Jen and me were amazed by this illustration ., she not have epilepsy ., yet she do suffer with both dyslexia and dyscalculia all her life ., when we be in high school .. Jen say my patient tutorig of her be the only reason she make the honour roll in algebra and calculus ., yet she shine in geometry ., only math class she do well in on her own .. Jen say I be gifted in math ., always I aspire6 to be math teacher ., Jen say you be best teacher ever William ., you save my GPA ., even with epilepsy and nocturnal seizures ., I graduate with Jen in 3 years at 15 .. with a perfect 4,0 and Jen with 3,9 ., a massive amount of hard work for us both .. as we needed to cram all our studies into 3 years ., including summer school vacations for college prep classes required for early graduation .. necessary because of my approaching December amputation surgery .. so .. we did manage to graduate early .. earning our diplomas in September ., prior to the surgery in December . yet well worth the effort and teamwork it be .,as it took a full year of the hardest work ever we be doing together .. as I be learning to walk again after .. hugs from William and Jen 💜💙🤗🤗🕊🕊

April 29
A MyEpilepsyTeam Member

My Vertigo

April 30
A MyEpilepsyTeam Member

I have autism but not on the spectrum

April 29

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