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April 9
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Answer Summary

Members shared their experiences with the two brain stimulators used for seizure control beyond VNS, identifying them as Deep Brain... Read more

Members shared their experiences with the two brain stimulators used for seizure control beyond VNS, identifying them as Deep Brain Stimulation (DBS) and Responsive Neurostimulation (RNS), with one member also mentioning traditional brain surgery to remove seizure-causing tissue. Several members described their personal journeys, including one who received DBS in 2011 during its beta testing phase for epilepsy after experiencing multiple daily seizures, and another who has had RNS implanted, while outcomes varied widely from significant help to limited effectiveness. A recurring theme was the highly individualized nature of epilepsy treatment, with members emphasizing that not everyone is a candidate for these procedures and that success depends on factors like seizure type, location, and individual response.

MyEpilepsyTeam

What are the brain stimulators used for seizure control besides VNS?

Great question! Besides VNS (vagus nerve stimulation), there are actually two other brain stimulation options used for seizure control:

Responsive Neurostimulation (RNS) - This device is implanted within the skull with wires connected to the brain's surface Show Full Answer

What are the brain stimulators used for seizure control besides VNS?

Great question! Besides VNS (vagus nerve stimulation), there are actually two other brain stimulation options used for seizure control:

Responsive Neurostimulation (RNS) - This device is implanted within the skull with wires connected to the brain's surface where seizures start. It monitors brain activity and delivers electrical pulses when it detects seizure patterns to stop them before they fully develop.

Deep Brain Stimulation (DBS) - This involves placing electrodes deep in the brain (usually in the thalamus) with a device implanted in the chest. It sends controlled electrical signals to help balance brain activity and reduce seizures.

All three options work differently:
- VNS stimulates the vagus nerve in your neck on a regular schedule
- RNS responds in real-time when it detects seizure activity
- DBS continuously stimulates deep brain structures

These are typically considered when medications haven't controlled seizures well enough or when traditional surgery isn't an option. Each has different eligibility requirements based on your specific seizure type and where they originate in the brain.

April 9
A MyEpilepsyTeam Member

Thank you for all your input my friends.
Let's move on though..... this really isn't effecting me. It was mostly geared towards a friend in need.
Thank you again.

April 17
A MyEpilepsyTeam Member

about 10 years ago. I had to have it replaced, because I had a small dog, that would jump on my knees. He jumped on the back of my knees. And I fell into the dishwasher. Some of the knives were sharp side up. Had to have my vns replaced. That was a very bad time

April 13
A MyEpilepsyTeam Member

I've had VNS done. And temperal lobectomy

April 11
A MyEpilepsyTeam Member

Very interesting.... thank you

April 9

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