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Please Help me to understand . My son has Epilepsy seizures he's been diagnosed since 2021. He's gone through different medications such as

A MyEpilepsyTeam Member asked a question 💭
Dorchester, IA

oxcarbazepine, Iamotrgine..still having seizures he's admitted to monitor to see why 7 days no seizures in the hospital taken no meds still no seizures . We are puzzled our family is puzzled ??? Could it possibly be that wearing the monitors he's not mobile therefore sitting with lack of movement decreases the episodes ?
Has this happened to anyone else??

March 29
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
That happened to me all of the time. I’ve had several EEG’s where I had no seizures. I believe it’s because during the EEG we’re just laying in a bed relaxing. Normal days we’re doing more activity and thinking about things which would make it more likely we would have a seizure. I never had any seizures during my EEG’s so I chose to get a Neurostimulator (RNS) which records my brain activity 24/7.

March 30 (edited)
A MyEpilepsyTeam Member

Your son remind me of myself. I’ve been on many Medications .. non worked 100% . My Epileptologist and the medical feild calls it Refractory Epilepsy ( resistant to drugs ) .

I’ve also been to many inpatient EEGs, where I was monitored in the hospital. They also got me down to nothing with my meds. It seems that my biology goes into survival mode.

I don’t know how old your son is. But when I was. Doing the inpatient.EEG my Dr. came to me asking if there were any foods or drinks that trigger my seizures . And since I was old enough, they even. Offered an alcohol drink of some kind. But I went with Regular Dr. Pepper . All regular pops/sodas trigger my seizures. That did it for them.

So do you know of anything that could trigger his seizures quickly ?

March 29
MyEpilepsyTeam

Why might your son have no seizures during a 7-day hospital monitoring stay, even without medication?

It's completely understandable that you and your family are puzzled by this situation. This experience isn't uncommon, and there are several possible explanations.

Hospital environments can actually reduce seizure triggers in Show Full Answer

Why might your son have no seizures during a 7-day hospital monitoring stay, even without medication?

It's completely understandable that you and your family are puzzled by this situation. This experience isn't uncommon, and there are several possible explanations.

Hospital environments can actually reduce seizure triggers in ways you might not immediately notice:

• Better sleep patterns - Hospitals often enforce regular sleep schedules, and lack of sleep is a major seizure trigger
• Reduced stress - Being in a controlled, supervised environment may lower anxiety levels
• Elimination of unknown triggers - Things at home like screen time, certain foods, or environmental factors might not be present in the hospital
• Consistent routine - Regular meal times, rest periods, and activities can help stabilize seizure patterns

The reduced mobility you mentioned could play a role, but it's more likely that the overall controlled environment and removal of potential triggers made the difference.

This information is actually valuable for your son's care team. It suggests that identifying and managing environmental triggers might be an important part of his treatment plan alongside medication adjustments.

Consider keeping a detailed seizure diary at home to track potential triggers like sleep quality, screen time, stress levels, and activity patterns. This can help you and your doctor identify what might be contributing to breakthrough seizures outside the hospital.

March 29
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I take Kepp Ira and oxcarbazepine. It took me five years to get my seizures under more controll. In 2023 I only had 4 seizures three months apart. In 2024 I only had 3 seizures the entire year. Last year I only had one seizure, was seizure free for 10 month, had a seizure in November.. I have not had any seizures this year.
Be patient. Even with medication your son may not be seizure free.

n

March 30

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