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Members shared varied experiences with hemiparesis after living with epilepsy for 20+ years, with some reporting no weakness at all while... Read more
@A MyEpilepsyTeam Member
I’ve had epilepsy for 30+ years, never even making it 2 straight months seizure free, and I’ve never noticed one side of my body being weaker than the other.
Grand artwork mo Brathair Sean .. be looking like a bass.. hugs and prayers from William and Jen 💜💙
@A MyEpilepsyTeam Member
Yes I have hemiparesis on my right side. It first happened when I was 18 . But my arm recovered but not my leg. Then again after my 2nd brain bleed ( age 46) happened on my whole right side. It was from a brain bleed 2x. Plus the 3 brain surgeries made me weaker. But I still have hope. Not giving up. Hope you are well. Have you been diagnosed with hemiparesis? If not and you feel like you have it maybe see your doctor. Just some thoughts.
I hope you’re okay! Dealing with epilepsy is tough! We have to be as strong as possible.
@A MyEpilepsyTeam Member
Oh, I’m okay. I understand how living with epilepsy is difficult as I’ve been doing it for 34 years. It’s good you have ways to keep you busy. Reading is something that I definitely can’t do as I have temporal lobe seizures. If I read something I’m just staring at words because I can’t remember or comprehend anything. Before I had seizures I could read a story and tell my mom everything about it but the very moment I started having seizures I no longer could/can remember any of it. My mom read every book I had to read in high school and she helped me with my homework. So I basically do things on my I-Pad as well as research. You can tell by My Story that I’ve researched a lot about my epilepsy. Everything I do has to be at home because I can’t drive. I’m into drawing and fishing as well so here’s a little combination of them both.
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