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My seizures have been progressing and have been affecting my everyday life. I’m a police officer, and have recently had to be put on short term leave. My medication makes me feel terrible and woozy and like I can’t stand up for a long period of time. If I don’t sleep a full 8-10 hours of uninterrupted sleep I have seizures regardless if I’m on medication or not. I’m having a hard time accepting this and dealing with this. I’m not even sure what’s the cause of my out of no where seizures.

March 18
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A MyEpilepsyTeam Member

Good post, I agree with the ai mentioned about and other people's opinions here, I think it's dif per person but get people's opinions here and then go to your doc about the post here and go from there about it and good luck with your search and outcome with it my opinion here amen

March 19
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
Your seizures could have come from something that happened years ago. I started having seizures when I was 10 years old and doctors verified that they’re due to my birth asphyxiation (HIE). I’m now in my 40’s and continue to have epilepsy. Medication has never helped me either so I’ve lived with my parents my whole life. I also had a traumatic head injury before I was 2 years old that knocked me unconscious.

March 18 (edited)
A MyEpilepsyTeam Member

Check your side effects of the medications you are taking at website,
https://www.drugs.com/

https://www.drugs.com/
March 18
A MyEpilepsyTeam Member

Hello Windie, my name is Tom W. Morgan and I too have Epilepsy. The type of seizures that I have are known as Focal.

I read your story and picked up about needing sleep. As a Researcher in Epileptic Triggers, Sleep is very important for all of us. For some, it can act as a trigger that will cause a seizure to happen.

I do have some information about what you can do to help get a better night's sleep.

Here are the ideas
1> Established a sleeping schedule and set a time to go to bed. Go to bed at that hour all the time and stick to it.

2> If you can, buy yourself a sleeping mask that will block any light from hitting the eyes. Thus, waking you up. Be sure to have the curtains closed all the way...not allowing the light to shine in through the window.

3> If you are a reader, read a book until your eyes become tired.

4> Blink your eyes fast for 20 seconds.

If you wish to, you can read my story and it will tell you more about myself and my research.

Thank you,

From a fellow Warrior and Friend,
Tom W. Morgan
Researcher in Epileptic Triggers

March 18
MyEpilepsyTeam

What causes frontal lobe epilepsy, and how can someone cope with a new diagnosis?

It's completely understandable to feel overwhelmed by this sudden change in your life. Frontal lobe epilepsy can develop seemingly out of nowhere, and in about 50 percent of cases, doctors never determine a specific cause.

When a cause is Show Full Answer

What causes frontal lobe epilepsy, and how can someone cope with a new diagnosis?

It's completely understandable to feel overwhelmed by this sudden change in your life. Frontal lobe epilepsy can develop seemingly out of nowhere, and in about 50 percent of cases, doctors never determine a specific cause.

When a cause is identified, it's often related to:
- Structural problems like birth defects or abnormal blood vessels
- Traumatic brain injuries
- Scarring from infections
- Tumors, strokes, or hemorrhages

Even without knowing the exact cause, effective treatment is still possible. The good news is that about 70 percent of people with new-onset focal seizures achieve complete control with medication and can continue living full lives. Regarding your medication side effects and sleep needs—these are important concerns to discuss with your neurologist. Feeling woozy and unsteady can sometimes be addressed by:
- Adjusting your dosage
- Trying a different medication
- Taking medication at different times of day

Sleep is a significant trigger for frontal lobe seizures, which commonly occur during sleep or between 2 a.m. and noon. Your need for 8-10 hours of uninterrupted sleep isn't unusual for this type of epilepsy.

Many MyEpilepsyTeam members have shared similar struggles with accepting their diagnosis. One member said, "I am still trying to cope and figure out my best course of action. I just starting having seizures 2 months ago. This is very new to me."

Don't hesitate to advocate for medication adjustments that allow you to function better while controlling your seizures.

March 18

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