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I think I would not mind, depends though on what is going to be done test wise, but I don't think it would be something I would want money for unless it was say a incentive and was included with it, other than that I would do it' voluntary and want no compensation for and it helps people know what we go through and a improvement for our condition we have, my opinion here, amen, what are your thoughts, curious and wondering is all?

March 12 (edited)
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A MyEpilepsyTeam Member

I participated in Double Blind Studies rather often. You did not know if you were taking a Placebo until the end. The issue of being paid never came up. Just helping with Research was a good thing.

March 12
A MyEpilepsyTeam Member

I've gone through studies for taking a new med. Then I went through a test surgery to see if main brain surgery could be done. I'll never regret that either since was found main surgery was able to be done. After that I was seizure free for 9 years, once started having seizures again, they were not as severe as had been. My trips to go to the NIH my flights to go up there were paid for and anything I went through while there also.

March 13
A MyEpilepsyTeam Member

I think I have had my share of tests done.

March 12
A MyEpilepsyTeam Member

I saw one that is made by Xenon Pharmaceuticals and is in phase 3. It’s for Focal Seizures sounds really good. Can’t wait for it to come out!

March 12
A MyEpilepsyTeam Member

Depending on what it was

March 12

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