Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Long Beach, CA

This is the best way to show what it felt like for me. It's a scene from the originals where Klaus activates the werewolf curse. Weird to say this is what it really felt like for me. https://youtube.com/clip/Ugkx1n2MPX2b6GUIQ3LRDS...

March 1
 · 
Reactions
A MyEpilepsyTeam Member

I’m not leaving you alone🫵🤭! I find myself frustrated that because I’m not jumping all over the place in my seizures as much and mainly having aware seizures people think I’m cool! They just don’t get it?! Nor do a lot of doctors👎🤞😖

March 2
A MyEpilepsyTeam Member

I had a grand mal seizure a few months ago and I hadn’t had one for over ten years. I have uncontrollable complex partial seizures. I felt an odd sensation and knew I wasn’t right I walked to my daughter at home. I went to the floor and I could hear her calling ambulance I heard the whole conversation although I was in my own world and couldn’t talk to her. I remember the ambulance arrived and that the ambulance stopped on the way to the hospital. Although I’m not sure why I was still seizing. I didn’t feel sick or anything but I knew a lot of what was happening and I instantly knew what was happening to me. I will be honest that’s what I hated about it hearing my daughter and the ambulance doctors helping me. Although I didn’t feel panic in seizure it was when I replayed it in my mind afterwards. I felt tired afterwards and I hope 🤞 I never have any more grand mal seizures again🤞🙏🤞🙏. I feel greatly for people that have had them and I feel for them💜

March 1
A MyEpilepsyTeam Member

To be awake during this must have been devastating for you ., our hearts break for you ., 💔 and we put you on our team.. we would like you to put us on yours if you like .. and also to be your friend ., hugs from William and Jen💜💙💔😭😢🤗🤗🕊🕊

March 1
A MyEpilepsyTeam Member

She can help you taper off meds and get your seizures better under control. Because when you're on medications marijuana and CBD won't work correctly because the medications are supposed to be blocking certain signals to your brain that cause the seizures but what they actually do besides that is screw up whatever you're trying to use cannabis for. Natural and synthetic medications don't mix together and won't have the desired affect you want. Learn this on my own just from paying attention and doing research

March 19
A MyEpilepsyTeam Member

I was getting 1 to 10 grand mals every 1-3 months because of stupid doctors and pill pushing idiots that only messed up my seizures worse than what they were. She's a cannabis neurologist

March 1

Related Questions

View All
A MyEpilepsyTeam Member asked a question 💭
Omaha, NE

A MyEpilepsyTeam Member asked a question 💭
Montgomery City, MO

A MyEpilepsyTeam Member asked a question 💭
Lancashire