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Auras on and off.

A MyEpilepsyTeam Member asked a question đź’­
Sussex, NJ

Feeling auras on and off all day. Not sure if I should tell someone. I don't want anyone to worry if it turns out to be nothing. What should I do?

February 21
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A MyEpilepsyTeam Member

The name of the game is preparedness [and continuing your life at the same time]. Be in a safe place, (middle of bed, sofa, lounge chair), don't use the oven, have phone at your side fully charged. Set up a blanket/pillows on the floor near your chair/sofa. If it's actually happening, lying on the floor is the safest place; make it comfy. Let someone know without sounding an alarm. Sound "the alarm" only when it is really needed. Keep meds nearby so you can taken them on schedule without having to get up from your safe place. Keep water nearby. (ie: limit your need to get up if you think getting up may not be safe) Try to nap. Sleeping may calm all of the potential activity that may be getting ready to happen.

February 21
MyEpilepsyTeam

Should you tell someone about experiencing auras on and off all day?

Yes, you should definitely tell someone about experiencing auras throughout the day. Auras are actually focal aware seizures themselves, not "nothing" - they're a real form of seizure activity happening in your brain.

Experiencing auras on and off all day is Show Full Answer

Should you tell someone about experiencing auras on and off all day?

Yes, you should definitely tell someone about experiencing auras throughout the day. Auras are actually focal aware seizures themselves, not "nothing" - they're a real form of seizure activity happening in your brain.

Experiencing auras on and off all day is significant and worth reporting to your neurologist. This pattern could indicate increased seizure activity that may need attention or treatment adjustment.

Why it's important to speak up:

* Auras are seizures, even though they don't involve loss of consciousness
* Multiple auras throughout the day suggests your epilepsy may not be well-controlled
* Your doctor needs this information to help manage your condition effectively
* Increased aura activity could potentially lead to more serious seizures

What you should do:

Contact your neurologist or epilepsy care team to report this pattern. They can evaluate whether medication adjustments or other interventions are needed.

In the moment when you feel an aura, get to a safe place - sit or lie down, alert someone nearby if possible, and follow your seizure action plan.

Your health matters, and reporting changes in your seizure patterns isn't worrying people unnecessarily - it's taking care of yourself.

February 21
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
My neurologist requires me to make a list of my auras and write down when I have one. I’ll take that list in along with my seizure list when I see the neurologist. Doctors do see seizure activity on the RNS where I had an aura.

February 22
A MyEpilepsyTeam Member

Grace, I like the advice you gave Sophie👍🏽

February 22
A MyEpilepsyTeam Member

Awe.

The same thing has happened to me..

I'd recommend letting your doctor know

February 21

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