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I am ok with how the medical system uses it, but there are lots of things I recently found out about, like sleep apnea is snoring and didn't know that, and as my seizures they call them for the medical field, I use to hear they were called fits, episode, moments stuff like that, I call it a little inconvenience to me and my current condition with, but curious about your thoughts on the post here is all, amen

February 13
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Answer Summary

Members shared their thoughts on medical terminology for epilepsy, with many reflecting on the shift from older terms like 'grand mal' and... Read more

Members shared their thoughts on medical terminology for epilepsy, with many reflecting on the shift from older terms like 'grand mal' and 'fits' to newer terms like 'tonic clonic' and 'focal onset impaired awareness seizure.' Several members noted that the updated language carries less stigma and helps ensure that doctors anywhere in the world understand a diagnosis, while others shared they are still learning the newer terms, often through this community. A recurring theme was that personal comfort with terminology varies by generation and diagnosis era, but what matters most is that medical teams understand the condition.

A MyEpilepsyTeam Member

It all depends on when u were diagnosed. When I was diagnosed it was petite or Grand mals, but now it’s tonic clonic or whatever the new terminology is. I was told it was so that no matter where u are the dr knows what ur diagnosis is. Every doctor will know what u have. Both my neurologists Ive had have always called it a seizure, however ppl who don’t have epilepsy have called it a fit, or flopping around like a fish outta water. Way back when they used to put us in a mental hospital it was because we were having fits and ppl didn’t understand what was happening. In my opinion/ experience, it’s always been based on what ur neurologist has called it based on when and where they were trained.

February 13
MyEpilepsyTeam

How do you feel about the medical terminology used for epilepsy and seizures?

It's completely understandable to have your own way of describing what you experience. Medical terminology has evolved significantly over the years to be more accurate and less stigmatizing.

The term "seizure" is now the standard medical term Show Full Answer

How do you feel about the medical terminology used for epilepsy and seizures?

It's completely understandable to have your own way of describing what you experience. Medical terminology has evolved significantly over the years to be more accurate and less stigmatizing.

The term "seizure" is now the standard medical term, replacing older words like "fits" or "spells." In 2017, the International League Against Epilepsy updated classifications to use clearer, more transparent language that better reflects current scientific understanding.

Here's what changed:

- Old terms like "grand mal" and "petit mal" are no longer used
- "Simple partial seizures" became "focal onset aware seizures"
- "Complex partial seizures" became "focal onset impaired awareness seizures"
- The focus shifted to describing where seizures start, awareness level, and behaviors

Whatever you call your experiences is valid. Some people prefer clinical terms, while others use more personal descriptions like "episodes" or "moments." A MyEpilepsyTeam member might say "I had an episode" while their doctor documents it as a "focal seizure."

The important thing is clear communication with your healthcare team so they understand what you're experiencing, regardless of the exact words you use.

February 13
A MyEpilepsyTeam Member

I am still learning the terminology. Most that I have learned about Epilepsy terminology, I have learned on this site!

February 18
A MyEpilepsyTeam Member

Left Temporal Lobe Epilepsy

Complex partial seizures
Present Terminology is, Onset Focal Impairment Awareness Seizure.

February 17
A MyEpilepsyTeam Member

I only know the new terms.

February 14

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