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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

A neutral post, has there been a different symptom of something else besides the condition you have that may have been uncomfortable with?

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

Curious and wondering is all, nothing against your response or anything else like that, I have I think two things that come to mind, I have had a experience with pneumonia when I was younger in my teens and was uncomfortable with for a 10 day period of and in the hospital with, and also a kidney stone in my life with in my mid 30s with and was very uncomfortable with and made it through with and don't want it to happen again with me or wish it on anyone else for that matter of speaking I'm… read more

January 17
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MyEpilepsyTeam

Have you experienced uncomfortable symptoms from conditions related to epilepsy?

It sounds like you've been through some tough health challenges. Many people with epilepsy do experience other uncomfortable conditions alongside their seizures.

Some common issues that can occur with epilepsy include:

* Respiratory problems and Show Full Answer

Have you experienced uncomfortable symptoms from conditions related to epilepsy?

It sounds like you've been through some tough health challenges. Many people with epilepsy do experience other uncomfortable conditions alongside their seizures.

Some common issues that can occur with epilepsy include:

* Respiratory problems and lung infections
* Gastrointestinal and digestive issues
* Chronic pain
* Sleep disturbances
* Mental health concerns like anxiety or depression

Pneumonia, which you mentioned experiencing, can actually be a concern for people with epilepsy, particularly aspiration pneumonia. This can happen when seizures affect breathing or cause food or saliva to enter the lungs.

It's really important to keep your healthcare team informed about any symptoms or conditions you're dealing with, even if they seem unrelated to epilepsy. Some medications can interact, and managing multiple health issues requires coordination.

A MyEpilepsyTeam member shared: "I am still trying to cope and figure out my best course of action. I just starting having seizures 2 months ago. This is very new to me and I really don't know what to expect."

You're not alone in navigating these challenges, and it's completely valid to feel uncomfortable with symptoms from various health issues.

January 17
A MyEpilepsyTeam Member

I have a good medical support team and don't feel any shame in discussing my health issues with them. Getting onto health issues quickly means there is a greater chance of them being solved successfully.

January 18
A MyEpilepsyTeam Member

I have hydrocephalus and I think I’ve had 7 surgeries to replace the shunt.

January 17
A MyEpilepsyTeam Member

not related to epilepsy, twice I had a hernia repaired. besides the soreness I couldn't lift over 5lbs for 6 weeks. I about went nuts sitting around the house

January 17
A MyEpilepsyTeam Member

Unfortunately yes. And because some of them could have been side effects from the epilepsy meds, they went undiagnosed for a while. Like my fibromyalgia. I was so tired I would come home for lunch and sleep, go back to work and struggle to stay awake, go home and where I used to start making supper right away, I would sleep for a couple hours, then start supper when I woke up. Lots of days I wouldn’t eat at all- just sleep. And the pain was unbelievable and the sweating was insane. For over a year I would tell my dr(s) that I was sick and tired of being sick and tired. And they would change my epilepsy meds which made it worse. Finally one dr got tired of me saying that at every visit, so he ran a few more tests and I was finally diagnosed with fibromyalgia. And that’s just one example

January 17

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