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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
December 27, 2025
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A MyEpilepsyTeam Member

They tried to prove that mine were period involved, because there are people who have that problem, and when I was just diagnosed, this was an easy answer. They even put me on a pill to "regulate my period," even though mine happened every month like clockwork, and it was never wrong. When that pill did not change the seizures, and I had more seizures because they took me off the "normal seizure medicine," they decided the period was not the problem. I spent more than 10 years unable to drive or do a lot of things, till they finally allowed me to have my brain surgery. I am now more than 11 years seizure-free. I am working on my Master's and breaking all expectations!

December 27, 2025
A MyEpilepsyTeam Member

I also had to have a hysterectomy, that also doesn't help with seizures because our bodies go through so many transitions, especially menopause

December 30, 2025
A MyEpilepsyTeam Member

Not me anymore, I ended up with cancer on my left ovary and cervix so they took all that out when I was 27, they told me I would go through early minapouse and it's true, I can't remember if had more seizures when I was on my period it's been a long time since I had one

December 30, 2025
A MyEpilepsyTeam Member

Do they still occur for you around this time.

December 30, 2025
A MyEpilepsyTeam Member

they gave me a "mini pill" at age 13 for this. needless to say, it never worked. But they kept me on it. I no longer take it and I'm 26 now.

December 28, 2025

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