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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Please help me with this situation.Perhaps I'm dealing with it

A MyEpilepsyTeam Member asked a question 💭
Philadelphia, PA

incorrectly.I have Grand Mal seizures regularly and afterwards I'm shizo effective.To help my loved ones I basically keep myself isolated most of the time,locked in the room.Its like they suffer from what I go through more than I do due to fear.I lost a family due to this and don't know what im supposed to do.Im reaching out for help

December 14, 2025
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A MyEpilepsyTeam Member

Sounds like your siezures are causing a Post seizure ( after seizure ) activity. You seizures are hitting the exact part of your brain that triggers you schizophrenia .
There are many of us who experience as Post seizure activity , like…..
1. feeling angry or mad
2. Depressed or sad
3. Possibly Laugh
4. Confused
5. May have trouble speaking
6. Exhaustion
And.other Post seizure activities.

December 14, 2025
A MyEpilepsyTeam Member

Hi cali try to shut myself off after a seizure

December 14, 2025
MyEpilepsyTeam

How can you help your loved ones understand and cope with your grand mal seizures?

It's understandable that you're trying to protect your loved ones, but isolating yourself may actually increase their fear and worry rather than help. Opening up about your seizures and educating those around you can be part of the solution.

Show Full Answer

How can you help your loved ones understand and cope with your grand mal seizures?

It's understandable that you're trying to protect your loved ones, but isolating yourself may actually increase their fear and worry rather than help. Opening up about your seizures and educating those around you can be part of the solution.

Consider being open with your family about your epilepsy. Help them understand:
* What happens during your seizures
* How they can help you during and after a seizure
* That seizures are a medical condition they can learn to manage alongside you

When people understand what's happening and know how to help, they often feel less afraid and more empowered. This can strengthen your relationships rather than strain them. What practical steps can help?

Teaching your loved ones seizure first aid can reduce everyone's anxiety. They should know to:
* Gently ease you onto the floor and turn you on your side
* Place something soft under your head
* Clear the area of sharp objects
* Time the seizure and call 911 if it lasts longer than 5 minutes
* Not restrain you or put anything in your mouth

After seizures, you may be confused for a period of time. Let your family know this is normal and temporary, so they understand what to expect.

Many people find that wearing a medical alert bracelet helps others identify that they have epilepsy if they're found during or after a seizure. Finding support

A MyEpilepsyTeam member shared: "I am so afraid of having more seizures... On a positive note I went in and had a massive welcome back we missed you!!! That was a real morale boost."

Connection matters. Consider talking with your doctor about:
* Whether your seizures are as controlled as they could be
* Support resources for both you and your family
* Ways to improve your quality of life

You don't have to face this alone. Reaching out like you're doing now is an important first step.

December 14, 2025
A MyEpilepsyTeam Member

I've heard it all throughout the 20yrs I've been dealing with it.The seizures don't even bother me anymore as much.Im more focused on trying to get them dealt with in order order to end the Schizophrenia issue.There's been times when I've became violent

December 15, 2025
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I am in my 40’s and I have had epilepsy ever since I was 10 years old. I have continued to live with my parents up to this day. They would rather I was living safe with them instead of living on my own.

December 14, 2025

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