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@A MyEpilepsyTeam Member , Welcome to the site! I encourage you to reach out to your local Epilepsy Foundation & for you it looks like it’s “Epilepsy Foundation Oregon” & for some reason they don’t have their own website but they do have a page with information about their events & their contact info at www.epilepsy.com & that direct link to their page on that site is: https://www.epilepsy.com/local/oregon . They also have a Facebook page under their name “Epilepsy Foundation Oregon”. Your local Epilepsy Foundation offers support groups & it looks like they offer virtual support groups & they offer events & they offer programs that might help you during these frustrating times & one they have listed is “PACES” & it’s a virtual program they offer & dealing with the emotions like depression & everything else that you might deal with due to your Epilepsy. You can contact them it says about getting signed up for it. Last year my local Epilepsy Foundation provided a virtual program about dealing with Chronic Diseases. So you might see if your local Epilepsy Foundation might ever offer that. Those are just a few of the programs. Also, I encourage you to reach out to your local Epilepsy Foundation about your situation with having trouble finding a Neurologist who takes Medicaid where you don’t have to wait for months to get in to see a Neurologist. Ask if there’s any way they could help you get in to see a Neurologist sooner & tell them how severe your seizures are. They’re there to help. My local Epilepsy Foundation helped me when I didn’t have any insurance & they helped me get my medicine, bloodwork & see my Neurologist by putting me on a program they had where I paid $25 dollars a year. The catch was that I had to use their Neurologist but luckily my Neurologist & her office volunteer with my Epilepsy Foundation & so I got to keep the same Neurologist. Also, manufacturers of medications usually have a Patient Assistance Program & they have you fill out some paperwork & will determine if you qualify for their help. But your local Epilepsy Foundation is the best place to start. And try to appreciate the fact that your son is willing to be there & help you because some people don’t have family that will help them. If he didn’t care about you, he wouldn’t do it. If you have any questions feel free to ask. Try to stay safe & positive. Prayers you feel better soon & your seizures calm down. 🤗💜🙏🤗 Your friend in Texas, Becky
try magnesium glycinate. Look it up online and read what its good for. i have sciatica, autoimmune disease which can cause pain. Its better than pain medicine. make sure youre eating an anti-inflamatory diet. dont drink, smoke, do illegal drugs. limit sugar, salt and lard. or it wont work as well. Good luck
Living with epilepsy can be challenging, especially when dealing with chronic pain. Many MyEpilepsyTeam members have shared their experiences with managing both seizures and ongoing pain. It's important to work closely with your healthcare team to develop a comprehensive treatment plan that addresses both conditions.
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Good post and? I agree with your post and others peoples opinions on it, Ai mentioned about it and such etc, but do get some options for the condition and situation at hand and go to your doc about the post here and see what they can suggest as for leads and referrals etc and go from there, but hang in there and try to stay pos, I do and so can you, my opinion, but don't quit whatever you do, you can do it, my opinion we are all here to support each other out as much as possible and you are included ss well as everyone else here and don't you forget that, we are all different and like make even the littlest things and say a I don't think it is going to be a game changer question here, it is!!! We're a support group of people who care about you and everyone else here? my opinion here, take care and don't quit and worry to much, or least try to, stay pos
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