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December 9, 2025
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A MyEpilepsyTeam Member

Yes it occurs a lot actually with restless legs- my seizures always occur upon waking so I have a ton of up all nighters

December 10, 2025
A MyEpilepsyTeam Member

I don’t struggle with muscle spasms. For me , it my thoughts that keep me awake. Many things will run through my mind. Things like …….
1. A song that may keep playing in my head like a broken record
2. Going over things that went on present day.
3. A movie I just watched
And many other things
I just can’t keep my mind quiet. When I try to sleep , my room can be quiet making my thoughts feel Louder .

December 10, 2025 (edited)
A MyEpilepsyTeam Member

Yes sometimes

December 9, 2025
MyEpilepsyTeam

Does anyone else struggle to sleep because of muscle spasms and worry about having seizures?

You're not alone in this experience. Many people with epilepsy deal with sleep issues, and the fear of having seizures at night is very real.

About 55 percent of people with epilepsy experience insomnia. The relationship between sleep Show Full Answer

Does anyone else struggle to sleep because of muscle spasms and worry about having seizures?

You're not alone in this experience. Many people with epilepsy deal with sleep issues, and the fear of having seizures at night is very real.

About 55 percent of people with epilepsy experience insomnia. The relationship between sleep problems and epilepsy can work both ways - seizures during the day can lead to sleep cycle problems at night, and poor sleep can make seizures harder to manage.

A MyEpilepsyTeam member shared similar feelings: "I am afraid to sleep because I am afraid I will shake while sleeping again. But I am gonna be strong and face my fears as I am sore and exhausted."

Some helpful approaches include:

* Talk with your neurologist about your muscle spasms and sleep difficulties - they may adjust your treatment plan
* Consider using a nighttime seizure monitor that can alert someone if you have a seizure
* Make your sleeping area safer with a low bed frame or mattress on the floor
* Practice relaxation techniques before bed to ease anxiety

The fear is understandable, but staying awake can actually increase seizure risk due to sleep deprivation. Working with your healthcare team to address both the muscle spasms and sleep concerns may help you rest more safely.

December 9, 2025
A MyEpilepsyTeam Member

I have grandmal seizures and thats why im scared i guess to sleep when it happens

December 10, 2025

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New York, NY