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I used to be a person who in the past keep it to myself and was uneasy about who or if I wanted to reveal it, I do so now and don't have a problem doing it at my call and discretion, I am not ashamed of my condition I have today and I have accepted it, I don't think my condition defines me of who I am in life with or anyone else that might have a condition or not, my opinion here ere, I am ok with that and I am especially thankful for my daily routine I have of prayer and Bible study in my life… read more
Answer Summary
Members shared their personal approaches to disclosing invisible conditions like epilepsy and MS, with many describing a journey from secrecy... Read more
I overshare, so everyone knows I have epilepsy.
I am me and the world needs to adjust
I don’t care what a person has. I have friends who have MS.
My son has Cp, Asperger Syndrome, and scoliosis .
I have friends with epilepsy, heart conditions and I don’t treat them any different.
@A MyEpilepsyTeam Member
I’ve had epilepsy over 30 years and I’ve never heard anybody in real life or on TV say a word about epilepsy
I am never quiet about my epilepsy. People keep telling me that, being this far post-surgery, I should be silent about it and move on. I tell them, "ok, how am I to explain being an older non-traditional student that is going back to college now and isn't a mother? Other than my medical issue, there is no other reason to have paused the schooling that long." Plus, by this point in my life, I have come this far, and if you are not going to accept me and my epilepsy journey, we are not going to have a good relationship. I have had to learn that with MANY FAMILY members over the years.
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