Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Houston, TX

I am out of work due to my seizures and my siblings like to make fun of me for having to live at my parents house

November 20, 2025
 · 
Reactions
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I am in my mid 40’s and I have lived with my parents my whole life. There’s so many things we can’t do on our own living with epilepsy. My parents have to drive me everywhere. Don’t think that you’re the only one who still lives and relies their parents.

November 20, 2025 (edited)
A MyEpilepsyTeam Member

It’s not easy to explain Epilepsy to someone if they are not willing to listen and try understanding. I don’t know how well they listen , but if they are willing , have them watch one or more of the documentaries with epilepsy. Especially ones that show all the person. Seizuring.

November 21, 2025
A MyEpilepsyTeam Member

They think I fake my seizures and I don’t at all and I loose my short term memory I’m just trying to prepare for the holidays cause I know my sister is going to make some snide comment about me living at home

November 20, 2025
A MyEpilepsyTeam Member

They will never know why until they walk a mile in your shoes.

November 20, 2025
MyEpilepsyTeam

How can you help your family understand your epilepsy and your current situation?

Having open conversations with your family about how epilepsy affects you is important, especially when it impacts major life areas like work and living arrangements. When talking with family members, try these approaches:

Keep explanations Show Full Answer

How can you help your family understand your epilepsy and your current situation?

Having open conversations with your family about how epilepsy affects you is important, especially when it impacts major life areas like work and living arrangements. When talking with family members, try these approaches:

Keep explanations clear and simple:
* Provide concise examples of how epilepsy affects your daily life and ability to work
* Describe what type of seizures you have and what symptoms you experience
* Explain what typically triggers your seizures
* Share information about any medications you take and how they impact you

Be direct about your needs:
* Be open about what kind of help you might need with daily tasks
* Explain that being out of work is medically necessary, not a choice
* Let them know that their support matters, and teasing can be hurtful when you're dealing with a serious medical condition

Open and clear communication helps set expectations for everyone. Family members may not fully understand what you're going through, so giving them specific information about your condition can help them be more supportive rather than dismissive.

If direct conversations don't help, consider bringing educational materials about epilepsy to share with them. Sometimes people are more understanding when they learn about a condition from multiple sources.

November 20, 2025

Related Questions

View All
A MyEpilepsyTeam Member asked a question 💭
Adelaide, AU

to

A MyEpilepsyTeam Member asked a question 💭
Brisbane, AU

A MyEpilepsyTeam Member asked a question 💭
Brotmanville, NJ