I know Someone who child is going through the beginning of epileptic. Ik everyone is different. They just think there child life is over ( can’t enjoy life ) and Finn get worse .
Tell them about ur experience growing up and don’t sugar coat it. Let them know that there’s going to be bad days ahead and the teasing and bullying; but also let them know that it’s not the end of their childs life. Despite the bad days they’ll still have plenty of great days ahead and on days or months they’ll even forget about the diagnosis. They just have to be a little more aware of what their child does and keep track of what they’re doing when they do have a seizure so that it’s easier for them to figure out what the triggers are so they can avoid the child having seizures that can be avoided. But if it was me( and it has been), I would make sure to tell them about what ur experience was and that they shouldn’t “bubble wrap “ the child. Let them live just like they would without epilepsy while still being smart about it. ( no climbing ladders, using power tools etc)) and to track what the child is doing when they have a seizure. It’s not the end of the world or the childs life. They still can do just about anything they want to, and don’t become helicopter parents- let the child live but watch what they are doing so that they can say no when they want to do something that they have noticed cause seizures. Basically don’t freak out just because of the diagnosis. Their child is still a child and doesn’t need to be treated like someone who can’t do anything anymore. Let them tell the kid that they can’t do some things anymore, but they can still do just about anything they want within reason. Tell them ur story and what u wish ur parents had done differently. They need to know that it’s not a death sentence, it’s just something they have to watch out for. But every time I’ve been put in this situation I tell them not to treat the kid any differently than any siblings,or how they are treating them now, let them try things and learn just like everyone else, but if the kid says they’re not feeling well or are just too tired to go to school and want to sleep longer, let them ( as long as they know it’s not just to avoid a test or something like a bully) and let the teachers know so they don’t think that the kid is just daydreaming; and make sure that the teachers are aware of what to do should something happen. I had parents ask me to talk to their kids who were newly diagnosed and I have. I told them that there will be some kids who will tease them- but they aren’t friends, so try to ignore them. Their friends won’t care about their seizures. I ask them if they have any questions and I answer them truthfully. I tell them that I had a normal childhood but I couldn’t do some things and I told them to watch for what they were doing b4 they had a seizure and to tell their parents about it.
But don’t be afraid Daisia to talk about ur experiences, feelings or emotions- it’s not only reassuring but it lets the parents know that it’s ok and their kid can live a relatively normal, safe life.
Good luck!! And keep it real
How can you support a parent whose child was recently diagnosed with epilepsy?
The most important message to share is that most children with epilepsy can grow up to live full, productive lives. They can drive, work, attend college, and raise families of their own. Epilepsy is part of who they are, but it doesn't define Show Full Answer
Patience is very important when dealing with an epileptic. Do your best to remain calm and keep stress to a minimal, Stress is the #1 seizure factor. Be sure they get 8 hrs of sleep each night, sleep deprivation is another thing that could cause a seizure, if they have a seizure don’t freak, speak to them in a calm voice they can still hear you and it is reassuring to hear a calm voice when in a seizure. If they have a grand mal don’t touch them but move objects out of their way that they may hurt themselves on, if they are biting their tongue or making choking sounds put something soft like a wallet or pillow in their mouth do not put anything hard like a metal spoon in their mouth and do not put your fingers in their mouth. I hope this helps
The best suggestion I can give is providing the parent information with Epilepsy information they can understand. For example, locate the number of the Epilepsy Foundation then provide it to the parent as that is the best place for any parent to obtain resources for his or her child. The Epilepsy Foundation can share guidance on steps that can be taken by the parent with their specific situation. I hope the above information helps.
You're doing a wonderful thing in helping out someone and providing them with this priceless information; it will last them a lifetime! Kudos to you! ♥️
Good post