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A MyEpilepsyTeam Member asked a question 💭
New Jersey, NJ

Myoclonic epilepsy

November 6, 2025
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A MyEpilepsyTeam Member

Relentless seizures and minimal-to-no response to meds could (rarely) be symptoms of an epileptic syndrome. For most of my youth ( until I had the neurosurgeries at age 30ish) , I had intractable seizures, regardless of which medicine I was on. These syndromes are rare. Fortunately don't have a syndrome. Sorry for writing so much.

November 8, 2025
A MyEpilepsyTeam Member

It means that your kid’s body is resisting the medication some. But. For some of us, your doctor just has to find the right prescription that works for you That may possibly happen.

But, if you’ve already been how many medication on the market. you may have Refractory Epilepsy ( resistant to medication )

November 6, 2025 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I have had drug resistant epilepsy ever since I was 10 years old. When I was 17 I got the Vagus Nerve Stimulator (VNS) but now have a Neurostimulator (RNS) but I still have epilepsy.

November 6, 2025
A MyEpilepsyTeam Member

Good post and? I would suggest getting people's opinions here which is ok with that and the ai if it suggests some info about the post here I then think then get some ideas from here and then go to your doc about the post here and see if they can give you some leads and referrals and resources to get the situation and condition you are going through and your son and get the necessary help that will be beneficial for you both and the outcome with it, you could look for a second opinion also if you decide to go that route, my opinion here, but good luck with your outcome with the condition you are your son are going through overall in the post here, my opinion here

November 6, 2025

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