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A MyEpilepsyTeam Member asked a question 💭
Oxford, UK

I work in a medical centre in the UK so I have my own consultation room and am 1:1 with patients so I'm not in view of other staff and when I'm not with a patient I'm alone in the room
My colleagues found me the other day in my room post seizure and my work want to know how to manage a way of keeping me safe. Does anyone have any advice with alarms or notification or anything so people know if I have one? I've looked into watches but there's no phone reception in the clinic only wifi.

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November 6, 2025 (edited)
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A MyEpilepsyTeam Member

As to staying safe, do you have any warning/auro before a seizure where you could trigger a way to communicate with someone. I get a warning and I usually have maybe 30 seconds or more to warn someone. Something that would cause someone to hear and respond. As fpr being emotional after a tonic/clonic seizure for sure. I am emotional and do not respond well to any stress either or demands to do a task. My brain is just not there, it is confused.

November 6, 2025
MyEpilepsyTeam

How can you stay safe at work with seizure monitoring devices, and is it normal to feel emotional after a seizure?

For workplace safety, there are seizure detection devices that can work over WiFi instead of cellular networks. When considering a monitoring device, think about:

* Whether you need alerts to reach colleagues Show Full Answer

How can you stay safe at work with seizure monitoring devices, and is it normal to feel emotional after a seizure?

For workplace safety, there are seizure detection devices that can work over WiFi instead of cellular networks. When considering a monitoring device, think about:

* Whether you need alerts to reach colleagues outside your immediate area
* If the device can connect via WiFi to send notifications
* How data from the device is shared with your care team or designated contacts
* Whether you want something worn all day or just during high-risk times

Talk to your neurologist about seizure detection options that work with WiFi connectivity, as some devices can send alerts through wireless networks rather than requiring phone reception. Regarding your emotions - what you're experiencing is completely understandable and you shouldn't feel embarrassed. Having a seizure after nearly a year seizure-free is emotionally difficult, and crying for several days post-seizure is a real experience that MyEpilepsyTeam members share.

The emotional response you're having is valid. You've been through something physically and emotionally challenging, especially after coming so close to that milestone. Be gentle with yourself during this time.

Consider talking to your healthcare provider about how you're feeling both about the workplace situation and your emotional wellbeing post-seizure. They can help ensure your treatment plan is working as well as possible and provide support for what you're going through.

November 6, 2025
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I am sorry we are both having to deal with this. I didn’t start having these problems until I was in my late 50s and early 60s. I find am also taking a longer time to recover and get over the brain fog.

November 14, 2025
A MyEpilepsyTeam Member

Mary I have been where you are. I am confused, cannot speak right and my memory is not great. It takes a day or so to recover. But I do recover, the brain has to realign. You are not alone with this.

November 12, 2025
A MyEpilepsyTeam Member

I have tonic-clonic seizures too. Mine are well controlled, but I have a breakthrough seizure every 2-3 years. I am very depressed after having my seizures, and it will last for several days. I am always convinced the previous seizure was my last one. With the last few seizures, I have also noticed I am disoriented for a longer period of time. I have thoughts running through my brain, and when I try to tell my husband about them, nothing comes out coherently. This lasts for about 30-45 minutes. This has only happened with my last few seizures. I am terrified I am going to get stuck that way. It usually takes me 1-2 days to fully recover from my seizures.

November 11, 2025

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