I work in a medical centre in the UK so I have my own consultation room and am 1:1 with patients so I'm not in view of other staff and when I'm not with a patient I'm alone in the room
My colleagues found me the other day in my room post seizure and my work want to know how to manage a way of keeping me safe. Does anyone have any advice with alarms or notification or anything so people know if I have one? I've looked into watches but there's no phone reception in the clinic only wifi.
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As to staying safe, do you have any warning/auro before a seizure where you could trigger a way to communicate with someone. I get a warning and I usually have maybe 30 seconds or more to warn someone. Something that would cause someone to hear and respond. As fpr being emotional after a tonic/clonic seizure for sure. I am emotional and do not respond well to any stress either or demands to do a task. My brain is just not there, it is confused.
How can you stay safe at work with seizure monitoring devices, and is it normal to feel emotional after a seizure?
For workplace safety, there are seizure detection devices that can work over WiFi instead of cellular networks. When considering a monitoring device, think about:
* Whether you need alerts to reach colleagues Show Full Answer
@A MyEpilepsyTeam Member I am sorry we are both having to deal with this. I didn’t start having these problems until I was in my late 50s and early 60s. I find am also taking a longer time to recover and get over the brain fog.
Mary I have been where you are. I am confused, cannot speak right and my memory is not great. It takes a day or so to recover. But I do recover, the brain has to realign. You are not alone with this.
I have tonic-clonic seizures too. Mine are well controlled, but I have a breakthrough seizure every 2-3 years. I am very depressed after having my seizures, and it will last for several days. I am always convinced the previous seizure was my last one. With the last few seizures, I have also noticed I am disoriented for a longer period of time. I have thoughts running through my brain, and when I try to tell my husband about them, nothing comes out coherently. This lasts for about 30-45 minutes. This has only happened with my last few seizures. I am terrified I am going to get stuck that way. It usually takes me 1-2 days to fully recover from my seizures.