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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

A neutral? Do you think you or we look at our overall health and well-being about the similar way we have in our lives with because of the

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

Condition you have and situation at hand, curious and wondering is all, I used to do that before and the medical condition I was diagnosed with, but that tapered off and it is about a equal I'd say, I get up and give myself a brief quick assessment and go from there with my day, I used to think of my condition I have today quite much more at first, but I am ok with how it is now even though they have their moments on occasion, I at first was baffled and afraid I'd say of the situation and… read more

October 30, 2025
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A MyEpilepsyTeam Member

Ok I have a bit of a story with this. When I was younger for some strange reason I would get really high anxiety for basically no reason whatsoever and it was alway health related, for example I would do something during the day that wasn't even bad then I would spend the rest of the day stressing over it then of a nighttime I thought I would die.

It then progressed when I finished school, I wasn't having the sleep issue but I was basically getting IBS so I assumed the worse than one thing would lead to another and it just wouldn't stop. Eventually I learnt the best thing to do was just STOP GOOGLING!! lol.

These days I admit I do google a lot more then I was when I stopped but its not about every little thing.

October 30, 2025
MyEpilepsyTeam

How do people with epilepsy balance thinking about their condition with overall well-being over time?

Your journey sounds very familiar to what many experience. That initial fear and preoccupation with epilepsy often does shift into something more balanced as time goes on. It's actually a healthy sign that you've reached a Show Full Answer

How do people with epilepsy balance thinking about their condition with overall well-being over time?

Your journey sounds very familiar to what many experience. That initial fear and preoccupation with epilepsy often does shift into something more balanced as time goes on. It's actually a healthy sign that you've reached a point where your condition doesn't dominate every thought, even while you stay aware of it.

Many MyEpilepsyTeam members describe a similar evolution. One member shared: "My brain is slower at times BUT that is OK. I will deal with that." Another said they've learned to look at "what I've got going for me" instead of dwelling on "why me?"

The daily quick assessment you describe is a practical approach that lets you stay mindful without becoming consumed by worry. This balance between awareness and acceptance often develops as people:

- Learn more about their condition and what triggers to watch for
- Build trust with their medical team
- Find support from others who understand
- Shift perspective from fear of the unknown to managing the known

Your sense of stability after years of learning is something to celebrate. Living with epilepsy does affect relationships, activities, and sense of self, but approaching each day with that brief check-in rather than constant worry shows real growth. The uncertainty at diagnosis is completely valid, and so is the calmer place you've found now.

October 30, 2025
A MyEpilepsyTeam Member

I think mine has gotten better when it comes to my seizures. But when it comes to other things worse.

October 30, 2025
A MyEpilepsyTeam Member

I never really gave it a second thought until my epilepsy kept progressing and then after a botched surgery and all the medical issues that came from it; or showed up around the same time; I really started to pay attention to my health. I always ate healthy, was in great shape, and sure I had epilepsy, ibs, PTSD, add and adhd; and a few other things; but everything was manageable and nobody was aware of any of it. But after the surgery and the progression again of my epilepsy and other illnesses,I’ve had to start looking for things that fit my symptoms. As many drs have said- it’s ur health and body, fight to get healthy again. Look things up and then bring them up to us and we’ll tell u if u do or don’t have it and why. But I’ve done that with other drs who flat out say that dr google should never be used to look up anything health wise. But yes I am more active in my own health care now. Plus there wasn’t any computers when I was first diagnosed so that helped lol

November 4, 2025
A MyEpilepsyTeam Member

@rhondaschnese
You are an inspiration. I do spend too much time on Dr Google, but feel pretty good at sorting the wheat from the chaff. I worked in veterinary medicine, and it was infuriating when clients came in requesting tests that were not needed and would not have helped in a diagnosis.

November 4, 2025

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