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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 28, 2025
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Answer Summary

Members connected over living with Dupuytren's contracture, sharing experiences of finger curling, painful lumps, and the impact on daily... Read more

Members connected over living with Dupuytren's contracture, sharing experiences of finger curling, painful lumps, and the impact on daily activities like playing music or walking. Several members described treatment options including needle aponeurotomy procedures, custom braces for flare-ups, and the challenges of finding relief when the condition affects both hands and feet. A recurring theme was the frustration of losing abilities once taken for granted, the unpredictability of symptom progression, and the comfort of knowing others understand these invisible yet life-altering struggles.

A MyEpilepsyTeam Member

I saw a commercial about a prescription medicine they have for that, but I also read the fine print, and it said Carbamazepine can cause that to happen, so people who have seizures couldn't take it.

December 10, 2025
A MyEpilepsyTeam Member

Tyranb77 , that’s exactly what I’m talking about. I’ve had my fingers in my left hand tried to curl up a little bit on several different occasions. As far as I know nobody else in my family had that on either side, but I also know that I’m the only one in my family on both sides that has to deal with both the epilepsy and hydrocephalus . I’m not aware of anyone on either side that has had the duplyntrens contracture and either hand

April 19
A MyEpilepsyTeam Member

I did some research and if you mean Dupuytren's Contracture; It's often hereditary and linked to Northern European descent. This condition commonly affects men over 40. Treatment, including injections or surgery, is used to improve finger mobility when they can no longer be placed flat.

April 19
A MyEpilepsyTeam Member

I get you Quinn totally. I’m having a PT coming over this afternoon.

November 4, 2025
A MyEpilepsyTeam Member

Quinn16 My PCP insists that I walk 30 minutes every day. In addition to the foot fibromas, I have really bad bunions. Those hurt more than the lumps. As opposed to inflicting pain on myself by walking, I use a bicycle in weather-friendly conditions, and a stationary bike if I can't ride outdoors. My balance issues are more medication related. I'd never pass a roadside field sobriety test, and it shows immediately if I have my eyes closed. I'll say though, for years I've been walking on the outside edges of my feet, and it has a bad effect on my hips and lower back. Custom orthotics don't help. I fact, nothing has helped, and I've gone through five podiatrists. I can't walk barefoot in sand. I'll make it about ten feet, and I have to crawl back on my hands and knees because I can't stand the pain. At least with bike pedals, I can position my foot so the ball of my big toe is pushing the pedal instead of putting the pressure on my arches. I'm falling behind with muscle mass also, and not just in my legs. It sucks, I know. Another invisible condition. We got the double-whammy.

November 4, 2025

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