Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

A neutral? With or without the condition you have, sincce a little kid till now, have you been in a situation or been in something that came

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

Along in your life with and feel like it seems a little bit awkward or maybe embarrassing if you were to try it out, I am just wondering and curious about the post here I am posting, I'm not saying do it on purpose to have it turn out that way at all, I can't think of anything I've done or tried out and a mistake making in my life with, but I don't mind failing at something I tried and didn't make it the first time, that way I know what I have to work at, not everything,I use my own call, but I… read more

October 28, 2025
 · 
Reactions
A MyEpilepsyTeam Member

MaryGibson, a cold homecoming parade is when I decided I had enough. wasn't an easy way to keep me or my trombone warm. I understand a family passion for riding. Dad had a full dressed Harley. He and mom took trips up and down the east coast with a local MC club. My boy road a Harley from the time he got out of the Navy until a few yrs. ago

October 29, 2025
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I do have to disagree, marching band was my best high school experience. I have had seizures since 1981 and I never really felt the need not to try something if I knew I was going to be safe. I even used to go rock climbing. Now my dad would put me on the back of his motorcycle and go about 80-90 mph and never worry about me falling off the back. I never did either, I think it was my one escape from all the worry.

October 29, 2025
A MyEpilepsyTeam Member

Since I haven't had seizures from birth, when I did get it from car accident. I've never been embarrassed about having it. I can't say I've never had aggravation at times. When I finally adjusted it's never bothered me since.

October 28, 2025
MyEpilepsyTeam

Have you experienced awkward or embarrassing situations related to epilepsy, and how do you handle them?

Your attitude about not being ashamed of your condition and embracing learning opportunities is incredibly positive. Many people with epilepsy do experience awkward or embarrassing moments, especially related to seizures Show Full Answer

Have you experienced awkward or embarrassing situations related to epilepsy, and how do you handle them?

Your attitude about not being ashamed of your condition and embracing learning opportunities is incredibly positive. Many people with epilepsy do experience awkward or embarrassing moments, especially related to seizures themselves.

Some common situations that can feel embarrassing include:

* Incontinence during seizures
* Having seizures in public or around people who don't know you
* Needing to explain focal aware seizures that people don't understand
* Feeling like you need to hide your condition to avoid judgment

Managing embarrassment:

One MyEpilepsyTeam member shared a resilient perspective: "I don't care anymore. Most people couldn't handle what we go through on a daily basis."

Others have found that being open about epilepsy reduces isolation and helps people understand what to do during a seizure. As one member said, "I have never been embarrassed about my epilepsy. When I go out with friends, they look out for me."

Your willingness to try new things, learn from mistakes, and not let epilepsy define you shows great strength. Continuing activities you enjoy—like music and singing—is important for maintaining your quality of life.

October 28, 2025
A MyEpilepsyTeam Member

I believe that in order to grow- u need to learn one new thing a day. Whether it’s a word and meaning or using something u’ve never tried b4. As long as ur learning- ur growing as a person. It’s when we stop learning that we become stagnant and we stop keeping up with the current world. Could u imagine if we didn’t learn that anyone who isn’t white isn’t good enough to do anything they want? We all would be a bunch of racist ppl who think it’s ok to put others down and use them as our slaves doing things we didn’t want to do. In my opinion that would be one ugly world to have to live in. I’m not saying it’s a perfect world right now, but hopefully we keep learning and looking for ways to make everyone’s lives better or easier.
As for riding bikes, my husband and I owned a couple Harley’s. I signed my marriage papers on the back of a Harley and signed my divorce papers on the back of a Harley lol. We used to go to the Ride for Sight and the bikers Christmas rides every year. It was great fun. And to see all the kids outside and waving and blowing kisses as we all rode by was heartwarming. Knowing that u helped someone have a better Christmas because of the toy u held onto while riding was worth getting cold. I learned something new every time we went.
If it’s getting late and I can’t remember learning something new, then I’ll look up some obscure words and learn what they mean and how they’re used. It’s just something simple, but I’m still learning

November 4, 2025

Related Questions

View All
You’ve Just Been Diagnosed With Epilepsy. Now What?
What MyEpilepsyTeam Members Would Tell Those Who Have Just Been Diagnosed
Epilepsy Bracelet: Medical ID and Alert Options
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In