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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

A neutral? If you could have something back or removed to the condition you have currently and still have your condition what would it be?

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

I am going to say my slight case of insomnia I have and I think that is it, I know it has it moment on occasion but I am ok with that and adjust Accordingly with that and it's not a issue with it, but just wondering what your thoughts are on the post, and how you look at it from perspective, a vent let's say on my post here, your job full time, or something you are prohibited from doing because of your condition and situation at hand, a food or such etc, no wrong opinions here , my opinion

May 20, 2025
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MyEpilepsyTeam

Living with epilepsy affects many aspects of daily life, and it's natural to think about things you'd like to change or improve. Sleep challenges like insomnia are common among people with epilepsy, and it's positive that you've found ways to adjust to these changes.

Many MyEpilepsyTeam members share that they've learned to Show Full Answer

Living with epilepsy affects many aspects of daily life, and it's natural to think about things you'd like to change or improve. Sleep challenges like insomnia are common among people with epilepsy, and it's positive that you've found ways to adjust to these changes.

Many MyEpilepsyTeam members share that they've learned to accept their condition while acknowledging its impact on their daily activities, work life, and overall independence. The key is finding balance between managing symptoms and maintaining quality of life. Remember that everyone's journey is unique. Some members have found that accepting their limitations while focusing on their capabilities has helped them maintain a positive outlook. As one member shared, "After years of feeling like I need to be better, stronger, healthier, and in control, I now know I am enough." It's okay to acknowledge both the challenges and the ways you've adapted to them.

May 20, 2025
A MyEpilepsyTeam Member

I developed the Ostroarthritis, as well as Bone Weakness earlier in life. I do not remember what it was called, but an Epilepsy Med caused it. My gums were messed up badly also. I think it was Dilantin.

May 22, 2025
A MyEpilepsyTeam Member

I wish I could have my children back that I lost due to having epilepsy, last time I saw them aged 10-12-14years old, that was 26years ago.

May 22, 2025
A MyEpilepsyTeam Member

I would want to lose some weight

May 20, 2025
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Yes , it's dilantin. I was on Dilantin for 55 yrs, until 2023 when I took myself off of it. As a calcium channel blocker, It's known to cause severe osteoporosis although I didn't know. My new neurologist said it's such an issue that they've been trying to get patients off it for 30 yrs. Now I've broken C5, C6,C7, & T6 lifting weights and/or stretching my neck. My cartilage is also degradated. Even more so, I'd want the family I could've had if not for the major side effects caused by the meds.

May 24, 2025

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