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Ones I wonder about if I did have one or was it not one, I have asked this before here, but I am aware of ones that happen and am awake when it comes about to me, but the did I or did I not have a seizure and maybe slept wrong or along those lines comes into play, my doc is okay with that I give to her, but I'm kinda wondering about the was it a seizure or was it not a seizure comes to me, and I am not sure if was, just my opinion here and thought here, what are your thoughts on it, and have… read more

October 23, 2025 (edited)
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A MyEpilepsyTeam Member

I am now 73 years old. I was diagnosed at 7. I now try to use Nile to keep track. I ha e not been counting, but 6 were recorded over a period of months, I do biw stress abiout if and when I will have, I normally am good about keeping track of my Triggers, which I know to avoid.

October 23, 2025
A MyEpilepsyTeam Member

zuI saw my Neurologist today. Beause I have Partial Awareness or Absence Seizures, she dow not expect that I would remember or know how long a seizure was, a opposed to the confuasion afterwards. The App I have from the Epilepsy Foundation, Nile, is a site to record if you missed meds, and if you have seizures and can give some descriptions. Tonight I did not take them until 11, but know how to get it back to normal.

October 23, 2025
A MyEpilepsyTeam Member

U can mark them down with a (?) behind it and explain why ur not sure and how u were feeling that makes u wonder if u’ve had one or not. I usually either beat myself up or chew my mouth so badly that there’s no question if I’ve had one or not. But I’m having aware seizures, it’s usually how I feel when I come out of it

October 23, 2025
A MyEpilepsyTeam Member

I'm aware enough to know if I've had 1 now and will put it on my notes online.

October 23, 2025
A MyEpilepsyTeam Member

The only way to get some idea of how many or whether you really are having any or not is to work what your focal aware seizures are (auras) depending on what type of epilepsy you have and where your seizures come from. The area in the brain they come from will give off different auras.

October 23, 2025

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