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The cbd we've tried doesn't control the seizure activity or the jolting my son has daily. The only thing even close to preventing his seizures is the Nayzilam nasal spray. Even then it doesn't always work. He's gotten a VNS device and that doesn't help much either, and he says it hurts a lot of the time. He takes 5 different seizure medications twice daily and still no relief. Thank you for the insight if any given.

August 7, 2025
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A MyEpilepsyTeam Member

I used Epidiolex but it gave me the hursheys bad i took my self off that med. Also other side afects.

August 13, 2025
A MyEpilepsyTeam Member

@QuitenMoreno for the Epidiolex you can also go straight to the manufacturer but you’ll definitely need to get the prescription approved first

August 7, 2025
MyEpilepsyTeam

To get Epidiolex, you'll need to
• Consult with your son's neurologist about whether Epidiolex is appropriate
• Get a prescription if the doctor determines it's suitable
• Work with your insurance company, as many plans cover Epidiolex for FDA-approved uses
• Allow time to find the right dosage, as this process can take Show Full Answer

To get Epidiolex, you'll need to:
• Consult with your son's neurologist about whether Epidiolex is appropriate
• Get a prescription if the doctor determines it's suitable
• Work with your insurance company, as many plans cover Epidiolex for FDA-approved uses
• Allow time to find the right dosage, as this process can take several weeks

Unlike over-the-counter CBD, Epidiolex is a pharmaceutical-grade medication with consistent, pure CBD content that's carefully regulated by the FDA. Epidiolex has shown promising results for difficult-to-treat epilepsy cases that don't respond well to standard medications. The medication comes in different dosage options (10mg and 20mg), and your doctor will determine the right amount based on your son's weight and specific needs. While side effects can occur, studies have shown Epidiolex generally has a better side-effect profile compared to many other epilepsy medications.

August 7, 2025

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