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A MyEpilepsyTeam Member asked a question 💭
Liverpool, UK

I’ve got generalised and was hoping to find someone who has had the vegas nerve implant, I was wondering if it works for generalised?

August 3, 2025
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A MyEpilepsyTeam Member

I had the Vagus Nerve Stimulation
( VNS ) done in 2005 but died stopped working in 2010 .

It didn’t work well for my type of Epilepsy.

August 3, 2025
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I once had the Vagus Nerve Stimulator (VNS) but I had no luck with it. My seizures start as focal but expand to generalized

August 3, 2025 (edited)
MyEpilepsyTeam

The Vagus Nerve Stimulation (VNS) device is primarily used for focal seizures, but it can help with various types of seizures. It works like a pacemaker for the brain - a small device is placed under the skin near your collarbone and connects to the vagus nerve in your neck.

Studies show that about half of people using VNS Show Full Answer

The Vagus Nerve Stimulation (VNS) device is primarily used for focal seizures, but it can help with various types of seizures. It works like a pacemaker for the brain - a small device is placed under the skin near your collarbone and connects to the vagus nerve in your neck.

Studies show that about half of people using VNS see their seizures decrease by 50% or more within the first two years of use. However, it's important to note that VNS rarely leads to complete seizure freedom, and about 25% of people may not see improvement. One encouraging aspect is that VNS benefits often improve over time. The device includes a special magnet that can be worn on your belt or wrist - when passed over the device, it can help prevent, shorten, or decrease the severity of an oncoming seizure. Some newer models can even detect a fast heart rate that might signal an upcoming seizure and automatically send extra stimulation.

Most people will need to continue taking their anti-epileptic medications while using VNS.

August 3, 2025

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