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I have the RNS and my doctor is suggesting to implant a VNS because I am seeking improved seizure control. I plan to have the surgery because meds don't control the seizures and the RNS does not control them entirely. The VNS is not as invasive, so that is good also. I know how the devices work, I just would like to know if anyone has had both and if it helps/improved seizure control? Thank you!! :)

July 24, 2025
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A MyEpilepsyTeam Member

VNS can also alter your voice

July 25, 2025 (edited)
A MyEpilepsyTeam Member

I know how both items work but went with the Deep Brain Stimulation implant

July 24, 2025
A MyEpilepsyTeam Member

Good post and? I have not had that with my condition, but get peoples opinions here which is ok with that and do go to your doc about the situation and condition you have at hand and go from there,I wish you good luck with your condition and situation at hand and the outcome of it, but hang in there and try to stay pos, I do and so can you, my opinion here

July 25, 2025
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I first had the VNS but had no luck so doctors later decided the give me an RNS.
So I had the VNS in my chest. Doctors told me that when I got the RNS that they were going to turn my VNS off completely and leave it in my chest. So they didn’t give me the option of having both the VNS and RNS running at the same time. I chose to just have a small surgery and get the VNS removed from my chest.

July 24, 2025 (edited)
MyEpilepsyTeam

While the search results don't specifically mention patients with both RNS and VNS devices, it's worth noting that VNS therapy benefits tend to improve over time. Almost half of people using VNS experience a 50% reduction in seizures within the first two years of use. Some users have even been able to reduce their Show Full Answer

While the search results don't specifically mention patients with both RNS and VNS devices, it's worth noting that VNS therapy benefits tend to improve over time. Almost half of people using VNS experience a 50% reduction in seizures within the first two years of use. Some users have even been able to reduce their anti-epileptic medications after successful VNS treatment. One encouraging aspect is that VNS can work for people with multiple seizure sites in their brain. While VNS may be less effective than other surgical options, it's significantly less invasive. The device includes a magnet feature that can help prevent, shorten, or decrease seizure severity when activated during an oncoming seizure. Since you're asking about real experiences, one MyEpilepsyTeam member reported having excellent long-term results: "Since my VNS was inserted 12 years ago (with one battery change two years ago), my seizures have been controlled. I have a checkup every six months."

July 24, 2025

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