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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Buffalo, NY
July 1, 2025
 · 
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , Your local Epilepsy Foundation likely offers support groups, not only for your son but for parents & caregivers as well (some locations offer it in person or online or both), & they also offer events, programs & resources -like if you can’t afford your son’s medication or something, your Epilepsy Foundation is there to help you. My local Epilepsy Foundation helped me when I didn’t have any insurance. You can look up your local Epilepsy Foundation at www.epilepsy.com, & for you it looks like it’s “Epilepsy Foundation W Ny” & their website is www.epilepsywny.org & you’ll find their contact information & likely information about their support groups, events, programs & resources they offer & they have a Facebook page under their name that posts their events as well. I hope this helps. Take care. Your friend in Texas, Becky

Epilepsy Resources & Support at Local Epilepsy Association of WNY
Epilepsy Resources & Support at Local Epilepsy Association of WNY
https://www.epilepsy.com
July 1, 2025
A MyEpilepsyTeam Member

Thank you

July 3, 2025
A MyEpilepsyTeam Member

Good post and? I agree with the ai mentioned about and get other people's opinions here and any other information from here and other leads and referrals you can get being it from here or a referral to, and see if the medical system and such etc can get you some info about what you are asking about here, I hope you get a couple leads and your outcome with comes to make your situation and your condition more that betters life with and turns for the better, my opinion hang in there and try to stay pos, I do and so can you,we are all here to try and help each other out as to our ability and support each other as well, my opinion here,

July 1, 2025
MyEpilepsyTeam

Yes! Support groups can be incredibly helpful for parents of children with epilepsy. Many parents find comfort in connecting with others who understand their unique challenges. Support groups are available both locally in communities and online.

Parents often discuss common experiences like
- Managing daily worries and Show Full Answer

Yes! Support groups can be incredibly helpful for parents of children with epilepsy. Many parents find comfort in connecting with others who understand their unique challenges. Support groups are available both locally in communities and online.

Parents often discuss common experiences like:
- Managing daily worries and anxiety about their child
- Navigating school accommodations
- Finding trusted medical professionals
- Sharing practical tips and coping strategies Some practical ways to connect with other parents include:

- Using technology like location alerts and safety monitors recommended by other parents
- Joining local epilepsy foundation chapters
- Participating in online communities
- Connecting with other parents through your child's medical team

Remember that seeking support isn't just helpful for you - taking care of your own mental health benefits your entire family.

July 1, 2025
A MyEpilepsyTeam Member

Jean, My Period was not predictable, but when it came I had more seizures. If it were more regular, I could have predicted them..

July 3, 2025

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