@A MyEpilepsyTeam Member , Your local Epilepsy Foundation likely offers support groups, not only for your son but for parents & caregivers as well (some locations offer it in person or online or both), & they also offer events, programs & resources -like if you can’t afford your son’s medication or something, your Epilepsy Foundation is there to help you. My local Epilepsy Foundation helped me when I didn’t have any insurance. You can look up your local Epilepsy Foundation at www.epilepsy.com, & for you it looks like it’s “Epilepsy Foundation W Ny” & their website is www.epilepsywny.org & you’ll find their contact information & likely information about their support groups, events, programs & resources they offer & they have a Facebook page under their name that posts their events as well. I hope this helps. Take care. Your friend in Texas, Becky
Thank you
Good post and? I agree with the ai mentioned about and get other people's opinions here and any other information from here and other leads and referrals you can get being it from here or a referral to, and see if the medical system and such etc can get you some info about what you are asking about here, I hope you get a couple leads and your outcome with comes to make your situation and your condition more that betters life with and turns for the better, my opinion hang in there and try to stay pos, I do and so can you,we are all here to try and help each other out as to our ability and support each other as well, my opinion here,
Yes! Support groups can be incredibly helpful for parents of children with epilepsy. Many parents find comfort in connecting with others who understand their unique challenges. Support groups are available both locally in communities and online.
Parents often discuss common experiences like
- Managing daily worries and Show Full Answer
Jean, My Period was not predictable, but when it came I had more seizures. If it were more regular, I could have predicted them..