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answer in return just to shut me up and walk off. What blows me away they keep asking if I’m alright. I refuse to keep repeating myself so all they can do is the same thing over and over I’m so done. 😒😡

May 12, 2025
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I understand. Since I am home all day, my husband just feels it is my responsibl to do all the tasks for cooking and cleaning no matter how i feel or my mobility. I don't get frustrated or stress becaue I don't want a seizure. My life is so so important.
Organize what you have to do and make sure you get some time for you, especially to rest. I cook food that can lasat for three days. Wednesday and Saturday are my days off. Plus I don;t do any cleaning on Sunday. This has helped my life alot.

May 21, 2025
MyEpilepsyTeam

It's completely understandable to feel frustrated when family members don't seem to truly listen or understand what you're going through with epilepsy. Many people with epilepsy experience this disconnect, where loved ones either minimize their experiences or respond with superficial concern without really engaging.

The Show Full Answer

It's completely understandable to feel frustrated when family members don't seem to truly listen or understand what you're going through with epilepsy. Many people with epilepsy experience this disconnect, where loved ones either minimize their experiences or respond with superficial concern without really engaging.

The pattern of asking if you're alright while simultaneously dismissing your actual attempts to communicate is particularly challenging. This kind of response can make you feel both invalidated and exhausted from constantly having to repeat yourself. Consider being direct about how their responses make you feel. You might want to have a calm conversation with your most receptive family member first, explaining specifically what support looks like to you. Sometimes people default to asking "are you alright?" because they don't know what else to say or do. Remember that your feelings are valid, and you deserve to have your experiences acknowledged and understood by your family.

May 12, 2025
A MyEpilepsyTeam Member

They spend so, so much time talking about me. But they simply do not want to sit down and talk to me directly, face to face. The difference is simply incredible.

May 14, 2025
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
Start planning now about your future.. Do some research about group homes for people who have disability and where they can live. In South Carolina they are called Babcock group homes.

July 13, 2025
A MyEpilepsyTeam Member

Hang in there and try to stay pos, I do and you, my opinion

June 9, 2025

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Sydney, AU