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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Detroit, MI
April 14, 2025
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A MyEpilepsyTeam Member

I do get support from family , but they sometimes may try telling me how to do something, that I have always known how to do. If I need help , I would ask for it

April 14, 2025
A MyEpilepsyTeam Member

Since i was in kindergarten, people have always treated me like i was strange and i was always isolated growing up. I'm 69 yrsld and because of the stigma of epilepsy, i still don't have any friends. For me, epilepsy and isolation go hand in hand.

April 14, 2025
A MyEpilepsyTeam Member

That's a good question because I have found out a few things that interest me. When I was having seizures, people had little about epilepsy they wanted to talk to me about. When I mentioned my surgery and how I have full control of seizures, they wanted to know everything before and after surgery.

April 14, 2025
A MyEpilepsyTeam Member

To me in my views this answer would always be different because everyone is not the same person so everyone wants to ensure people are equal to what they see is correct or incorrect and to me everyone’s mindset is different so no one will always be the same however it doesn’t mean we can’t try to understand to be around each other and respect each other.

April 14, 2025
MyEpilepsyTeam

Living with epilepsy can be challenging as it's often misunderstood by others. Many people with epilepsy face daily struggles that others may not fully comprehend. It's a chronic condition that impacts daily life, and sometimes others don't realize the extent of its effects.

Healthcare providers recognize that epilepsy is a Show Full Answer

Living with epilepsy can be challenging as it's often misunderstood by others. Many people with epilepsy face daily struggles that others may not fully comprehend. It's a chronic condition that impacts daily life, and sometimes others don't realize the extent of its effects.

Healthcare providers recognize that epilepsy is a serious chronic disease requiring ongoing support and understanding. They acknowledge it's not just about managing seizures, but also supporting the overall quality of life and emotional wellbeing of those affected. The best approach is being open with healthcare providers about how epilepsy affects your daily life, work, and home activities. This helps ensure you receive appropriate support and understanding. Many doctors can connect you with additional resources like social workers or counselors who can help navigate various aspects of life with epilepsy, including workplace and social situations.

April 14, 2025

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A MyEpilepsyTeam Member asked a question 💭
London, UK