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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
St Augustine, FL
February 24, 2025
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A MyEpilepsyTeam Member

Ok great thanks for the information. I had that seizure in September and had to be intubated and was in the hospital a few days. God's hand is upon me thankfully.

February 24, 2025
A MyEpilepsyTeam Member

Good call with the pos post here, I agree with that, hang in there and try to stay pos everyone here, I do and so can you my opinion here

February 25, 2025
A MyEpilepsyTeam Member

Yours is a type where the seizures lasts 5 minutes or longer now I'm not sure how long my fully lasts and each one but I know I've been told mine have gone past the expected time and they have my mom a like inhaler is what I'm guessing it is it blows some air in nose or mouth and it should instantly stop my seizures but if it keeps going however it hasn't yet there supposed to call ambulance about it. Mine are Gran Mal Seizures and the last one I did have my leg was jerking real bad at the entertainment center plate it's some type of heavy thick black glass plates to hold stuff on my entertainment center in my bedroom and my leg kept hitting it. Yours also mentioned jerking and tension I get that as well along with headaches after every single seizure. However even though these things are bad it's best we keep fighting through each one don't let this drag yourself down if you do you'll only live in fear it's best to just keep fighting and remember it's another day.

February 24, 2025
A MyEpilepsyTeam Member

I’ve been in status quite a few times. Hope you are doing well.

February 24, 2025
MyEpilepsyTeam

Status epilepticus is actually not a specific type of seizure - it's a serious medical emergency that occurs when a seizure or cluster of seizures continues for more than 30 minutes without stopping. This condition requires immediate medical attention as it can be life-threatening. The underlying seizures that lead to Show Full Answer

Status epilepticus is actually not a specific type of seizure - it's a serious medical emergency that occurs when a seizure or cluster of seizures continues for more than 30 minutes without stopping. This condition requires immediate medical attention as it can be life-threatening. The underlying seizures that lead to status epilepticus can vary from person to person. They may include cognitive seizures (affecting speech and understanding), emotional seizures (causing sudden fear or mood changes), sensory seizures (affecting senses like vision and touch), or autonomic seizures (affecting involuntary functions like heart rate and breathing). You should work closely with your neurologist to identify your specific seizure types and develop an appropriate treatment plan.

February 24, 2025

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