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A MyEpilepsyTeam Member asked a question 💭
Pittsburgh, PA

Hi all I had my epilepsy surgery and I'm going on my 3rd surgery 2nd resection in less than a year🙄 if they told me I need another I'm going to seek a 2nd opinion I'm trying to figure out good places to go that would be recommended. If you don't mind sharing where you went it would be appreciated we'd be willing to travel

January 19, 2025 (edited)
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A MyEpilepsyTeam Member

My first surgery called Gamma Knife I had done at The Cleveland Clinic. I had a HORRIBLE experience there. My 2 Laser Oblation surgeries I had at the University of Michigan(GO BLUE). Since my last laser oblation surgery on June 15, 2018, I have been seizure free since!

February 1, 2025
A MyEpilepsyTeam Member

Mayo Clinic in Rochester, MN
In 2019- I had my right Temporal Lobe, Hippocampus, and Amygdala removed. I was seizure free for over a year.
My seizures are less and different.
The surgery went great! The Surgeon was Fantastic as was the entire team. Follow up care was awesome.
But my short term memory is gone. My emotions are not clear and I feel like another person some days.

January 22, 2025 (edited)
A MyEpilepsyTeam Member

Right Lobectomy Brain Surgery at Swedish Hospital in Seattle,WA.

January 20, 2025
A MyEpilepsyTeam Member

I had AVM removal at Crouse Irving Memorial in Syracuse NY the other 2 at The Montreal Neurological Institute in Montreal Canada.

January 19, 2025
A MyEpilepsyTeam Member

I had my anterior lobectomy at UCLA, my left hippocampecyomy at SantaMonica-UCLA and Vagal Nerve Stimulator at John Hopkins. I was going to have another procedure at UCSF but my main focus is in my Brocas. They are working with medications only !

January 19, 2025

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