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I’m wondering if this happens to do with spinal stenosis that I’m getting or if I’m getting it have not been able to get an answer from either neurologist or general practitioner as of yet not really sure where to turn with this. But whatever that says it also causing aching in the hip on the right side down to my feet anybody else experiencing this right now?

December 25, 2024
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A MyEpilepsyTeam Member

BabyGirl8, Yes I know I’m a mess. I feel it too everyday. You’re such a sweetheart. Like always it’s always travel travel on the holidays for my family. Christmas even I was
exhausted by the time we got home. My body is letting me do very little anymore and I’m feeling it more and more each day. Other than that it was OK. Hope you had a good one.. Luckily I’m off today and don’t have to go in tonight. I do feel weak in my legs when in on my feet to long. I feel it more and more as a week go by. I have all idea what ever I’m feeling in my spine is causing it. From what I’m reading. It’s either spinal sclerosis or MS starting on me. If you can only imagine the fear I keep having because of that. Both of those if it’s one of the two can cause paralysis plus all the symptoms I keep getting as well. Plus, it kills me some days when I tried to be on my feet and it’s too painful.

January 2, 2025 (edited)
MyEpilepsyTeam

It's understandable to feel frustrated trying to get answers about the burning sensation and pain. Spinal issues can sometimes cause radiating pain and be tricky to diagnose. Without examining you, it's impossible to say if spinal stenosis or something else is the cause. I would suggest being persistent with your doctors Show Full Answer

It's understandable to feel frustrated trying to get answers about the burning sensation and pain. Spinal issues can sometimes cause radiating pain and be tricky to diagnose. Without examining you, it's impossible to say if spinal stenosis or something else is the cause. I would suggest being persistent with your doctors, keeping a symptom journal to share, or considering getting a second opinion from another specialist. Stay hopeful that the cause will be determined. Many MyEpilepsyTeam members experience unexplained nerve pain but have found relief through treatment adjustments, physical therapy, or alternative options.

December 25, 2024
A MyEpilepsyTeam Member

Babygirl68, Good eveng I have full intention tell my general practitioner in a couple of weeks that I want an MRI done. I’m noticing now walking just on foot has me getting worn out and winded . Ya I know you told me you’d hate for me to be wheelchair Bound but the more I think about it I think it’ll help me a great deal . I’m greatful for your generosity. I can tell you really care on what I’m going through on a daily basis now. I’m at the point right now wishing I had a wheelchair just to keep me in on a daily basis right now. Experiencing.this fatigue is exhausting for me along with the weakness in my legs as well. I’m having to spend to much time on my couch when I’m home I need my freedom back. I think Sammy knows too that something is up with me as well. The little guy keeps me company when I’m home, but yeah, his little face shows that he knows. Somethings up. Hope you have a good weekend this weekend and stay seizure free this weekend.

January 17, 2025
A MyEpilepsyTeam Member

Good Morning Babygirl, Glad to hear you got to spend some time with your daughter. Yesterday I was off all day so i kept myself comfortable all day by staying in my pjs and robe all day. No I haven’t had a chance to tell my Dr what I’m going through. I go to my family doctor next month but don’t go to my neurologist til June. I’ve already told my neurologist what I’m experiencing and about the only thing I got back from him was it had nothing to do with my prescriptions. I also told him I had no problem getting around with a mobility device if I had to . Referring to a wheelchair mostly, his response to that was he didn’t think needed that. The whole time reading his response I’m thinking what good are you? My neurologist hasn’t been a lot of help to me so far. I get better results from my gp. This morning I’m experiencing a burning sensation all down my spine into my legs. This is exhausting.most of the time for me. Truthfully I probably could be a full time wheelchair user with all of this. I know it would definitely get rid on what I’m going through with me in a sitting position. I’m mostly comfortable in a sitting position than standing trying to get around on foot now. Babygirl thank you so much you’re generosity . I can very much that you feel for what I’m going through day in to day out. I plan on requesting handicap parking window pass plus plate when I see my gp next month. I feel like I need it now.

January 5, 2025
A MyEpilepsyTeam Member

I'm sorry to hear that @Quinni16 I am sorry to hear that Hun. how was your Christmas and new years?

January 2, 2025

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