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I was diagnosed with my condition at 7 before i had stuff happening with me and didn't know what to make of it, i was thinking I'm a freak in some kinda way, i was scared,puzzled about how to handle this unknown thing I was going through, but I found out about my diagnosis at 7, everything since then to me is a good learning experience for me, I know that I have my condition and such etc, I am ok with it, I wouldn't wish my condition on anyone, but I've learned things about myself I learned from… read more
Since I started IViG for Stiff Person Syndrome ( Celine Dion ) every 28 days have not had a Seizure till today was fine that since November 2022
It's understandable to feel scared or unsure when first diagnosed with epilepsy. Many members of the epilepsy community have shared feeling similarly. Over time, they've learned important things about themselves and how to manage their condition. For example, identifying triggers, finding the right treatment plan, and Show Full Answer
The best thing I just recently found out was my sister's opinion. I always thought she was disappointed and embarrassed to have me as her sister. She recently told me "your a very strong person. I could never deal with all the things that the seizures the have taken from you. I don't know how you do it."
The only thing i could say is "well... it's normal to me. I don't know anything else."
She said "I never thought of that.
I was 7 when they started. It's been 59 years.
I found out I had seizure activity years before I was diagnosed. I knew something wasn't right but no one would listen to me.
Having epilepsy has lead me into understanding how close I was to dying when I was born.
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