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I'm not knocking the medical field and my doc (s) I have seen and are seeing, but I am ok with the treatment and the meds I am currently taking, I have had my meds changed after a long long time, I was seen by a new doc that did that when I moved out here and found a job with benefits, I didn't? Her she changed them, but after all the time since I was diagnosed with my condition, I seem to have a kinda Keen feeling I know something a little bit more than they do of my condition and such etc than… read more
It's understandable to feel you know your own condition better than doctors sometimes. Living with epilepsy day to day provides personal insights that medical professionals may not fully grasp. At the same time, doctors have extensive medical training and see many patients, so they may identify patterns or best practices Show Full Answer
The Dr.’s who are trained in understanding Epilepsy have great knowledge on Epilepsy. But, we understand the struggles with the side effects of the AED meds , the emotions involved and ect. We all understand that better, than anyone including our Dr. they aren’t experiencing what we do, because they don’t have this condition.
I only felt I knew more than my PA and I did. He was trying to lower my phenobarbital too fast and I was starting to go through withdrawal.
My doctor's and surgeon are THE BEST! They not only found the cause of my Epilepsy, They found the right surgeries and I am now over 6 years seizure free. It doesn't get better than that!
I do too, agree w/ the reply from them. That's why if you have have any questions or curios your should never hold back on asking any questions to your Dr. If don't understand ask him/her if could inform you more as far as that.
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