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What Now ? Night Time Care Provider ? Day Time Support ? No Support Network To Speak Of.

A MyEpilepsyTeam Member asked a question πŸ’­
Juneau, AK

unspecified Epilepsy / seizure disorder , where do i go from here after they changed it from PNES to Epilepsy. whats next really, my family is not supportive of my diagnosis of epilepsy or autism spectrum disorder but if it was specific family memebers they care. i feel like a mutant really .

September 2
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A MyEpilepsyTeam Member

But if they changed your diagnosis from PNES to epilepsy it means that its confirmed that you have it?

September 2
A MyEpilepsyTeam Member

I'm sorry. It's rough when doctors can't find the right diagnosis. When I was a kid doctors told my mom I was having panic attacks, when i explained to them what all happened when i had a seizure. All because I said I get scared first. They assumed my seizures were controlled, but I knew they weren't. I found out when I was 23 that fear was one of the many types of auras people have before going into a bigger seizure. I hope you can get the right answers and treatment to help you.

September 3
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A MyEpilepsyTeam Member

when I was young my parents prayed for me. When they noted I was ending up in the ER. They finally addressed it when I was in college. I had them when I was young but would turn blue. They prayed. I got tired of severe headaches and sz. They agreed in college to see a physician. I felt dumb but loved my Neurologist told me to work. He suggested nursing or Neurodiagnostics. My seizures were better when working. I was diagnosed recently with drop sz and night sz. I want to work. I have a lady that works half day now. I can work from home doing computer work and answering phones. ☎️ But We are told of limitations but everyone has ability to do something! I mentally am better and sz and asthma not so severe. I wish you the best! We can do more than we think! I periodically realize there are people that have worse situations. Blind , deaf and they teach or use phone to help others and I pray things will be better for you. My teacher in high school said β€œLife is a festival!” Take
Care of your beautiful self!

7 days ago

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