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Ok. So you do that. Cool. Have you considered how traumatizing this is for some people to hear this, then think of applying it to their condition. Opposed to encouraging
The medication I take helps me remember.... who my kids are, where I live, how to pick up this phone and use or remember I have this communication device. Not all seizure conditions are the same, some people are better living with or managing the side effects. I'm glad to hear some people can manage their condition without… read more
I don’t think anyone can truly ignore any pharmaceutical medicines . Using common sense, is the right choice for AED pharmaceutical drugs. Choosing to stop taking any AED is the worst choice to decide..
Then there are all the many brand name OTC drugs. I can guarantee that those people hove OTC meds in their home. Those are also pharmaceutical.
@A MyEpilepsyTeam Member ok, i am on both the keto diet, cbd, and keppra and phenobarb. if i do not take the cbd, i have daily seizures. my cbd calms the brain, and that calms the 1st wave of seizures (warning seizures). keto is a mix bag. sometimes its every other day, sometimes its a whole week without. i know this cause i had the keto diet when i was a kid to tween... cbd was bre pandemic (2017-2018). i am on the keto diet... but i don't weigh everything. yes i have seizures... no it is not cause the seizure meds are working... yes with the keto diet and cbd, i can get a couple of months seizure free (without is seizing every day). that is a win in my book.
I am glad you talk about your family helping. I have a really great husband and friends who care alot. It makes a huge difference. And then there are the cats...one of them is like a dog, wanting attention, when he is not sleeping. The other comes to me and lays on me when I am having a hard time. And kids are just so great. I love being around them. No judgement on anyone's approach.
I just want to learn more. Thanks for your post. Hope you are having a great day, Jacque3.
Sure I hate the side effects. I lose enough hair every time I shower to make a doll wig, and even though my seizures are not yet controlled, they are less active. So I am grateful for my medications.
@A MyEpilepsyTeam Member oh.. i got ya. yes, mom is my caregiver. i am 80-90% independent but with the surgery... i'm limited on meal prep (i only have 1 working arm), driving, and housing. all the rest i can do myself. my mom, stepdad, gma, and (once in a full moon) i of my aunts.
as for the rx free lifestyle... do you know mom is a med biller? sales reps go in and outta the office all the time (1-3 reps a week) (mostly every tuseday and/or thurday). and yes, thay need to do anything to make a profet. that is why mom med biller at home (about a year ago).
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