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May 28, 2024
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A MyEpilepsyTeam Member

Well I have a new nuero and he's doing an mri and another test so let's see what he trys to tell me

May 28, 2024
A MyEpilepsyTeam Member

Yes, the past several years I have had seizures on a regular basis than i experienced in the past 17yrs of epilepsy. He increased my seizure medicine to max dosage, added another one. During time I was persistent something is going on, why they increase? He did 2 emu's with no seizures and wanted keep increase 2nd seizures meds. He was persistent I had sleep apnea and the cause of it. Well, I didn't think I did but got sleep study done to comprise and I suggested getting 2nd opinion and he agreed. He said a good doctor will comprise and work with patient as they can. Ended up 2nd opinion and they did 3rd emu and found have PNES, which explains feelings of a seizure to me. I also had sleep apnea. So both of us working together I got answers

May 28, 2024
A MyEpilepsyTeam Member

It's dif per person, but I myself have not had no disagreement or anything along those lines of happening, it's been since with my current doc good communication and she is a ok communicating with what has to be discussed with me, I don't have any prob with anything as for my condition and such etc, I don't remember anything else in the past since I was diagnosed with my condition being a disagreement either, my opinion here ok as is.

May 28, 2024 (edited)
A MyEpilepsyTeam Member

I have always had good conversations with my doctors about my health and my treatment plans. I have had one bad PA and I had to leave the practice. I do have a rule that if a doctor will not laugh with me, I will no longer be seeing them.

June 12, 2024
A MyEpilepsyTeam Member

If ever that was the case, I was taught to find a new physician. Instead of seeking a way through the conversation, I was taught to run away and fear the doctor that could have been on my side and helped me. ...and now everyone wants me to be like "you should talk to your mom"

My mother told me not once but twice she didn't love me anymore.
I told her I loved her. And I was sorry she felt the way she felt towards me.

June 4, 2024

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