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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I have Catamenial, frontal lobe, and temporal lobe epilepsy.

May 13, 2024
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A MyEpilepsyTeam Member

I have TLE. My best advice would learn as much as you can, but don't look to much into it, once you do that see if you can do things a little bit differently and if your seizures are under control and you have made the changes then try to forget about it if that makes sense.

May 13, 2024
A MyEpilepsyTeam Member

I have Grand Mal Seizures so I know they can happen any point at anytime but it’s inevitable to stop the damage of the effect so to me it’s best to live the best of my life the best I can whether it’s through rough times on other events or a more secure safety life which I know most choose the security I don’t I want to be free of what I wanna do now I'll admit there’s a few things I won’t do like swimming because I don’t wanna scare others if it happens also I want to just live life the best we can as humans because we can’t leave the world we’re in so it’s best to embrace it and keep fighting but there are ways to help you deal with it like certain hobbies or a interest that you like that can help you get by this world day by day it’s our best chances of making it till then. Always be more like ourselves and less like everybody else…. Always be proud who we are as epileptic people I know it feels like a curse but it’s a thing that makes us more different then others and different isn’t bad.

May 14, 2024
A MyEpilepsyTeam Member

If you can calm an relax, it helps,
But if you fear what can happen.
Your own mind will always have the stress an Anxiety. It's better to not fear it a try to live with it. I can tell you every Seizure is different. Cause an Effect. Unpredictable an unknown reason's a Doctor or Phylogest
Has no remide medications or other side effects

May 14, 2024
A MyEpilepsyTeam Member

I have frontal lobe as well I deal with aruras a few or more times a week but stay strong we all got this battle have a great day

May 13, 2024
A MyEpilepsyTeam Member

It's dif per person, I have petti mal grand mal and nocturnal ones, there are more than that out there, I think that a seizure is a seizure, they have different effects on me and you and everyone else here, I hope you hang in there and try and stay pos and strong through your condition and such, and hopefully you can get your condition in somewhat of in a place in your life with your more stable than before and more comfortable with as well, it's not easy but you can do it, we're all in our own conditions and such and like to help you out with what you are going through, but don't give up and try not to get to a level you don't have to be at, just try and stay pos, you can do it, my opinion to you.

May 13, 2024 (edited)

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Fallon, NV