Has Anyone Had VNS Therapy And Could You Tell Me How It Helped Or Didn't Help, Or Just Your Experience And Any Advice Please? | MyEpilepsyTeam

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Has Anyone Had VNS Therapy And Could You Tell Me How It Helped Or Didn't Help, Or Just Your Experience And Any Advice Please?
A MyEpilepsyTeam Member asked a question 💭
posted January 22
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A MyEpilepsyTeam Member

The VNS did help me. The pinch a person feels in their neck on the left side can be adjusted to lower or higher strengths. When I had mine a few things could be done. I have absence seizures, so a person could slide a magnet across my chest, it did not stop my seizures completely, but it lowered the strength of the seizure. If the seizure was not intense/strong after I applied the magnet 🧲 I really did not feel it anymore. Like the message it did cause me some small anxiety, but that is psychological and I got over that. I had the depth electrodes test first, now the RNS has been introduced to me. Having epilepsy is really annoying at times, but it does not stop a person from doing everything. Look up some of the famous people that have or had epilepsy, ex. President Teddy Roosevelt. Good Luck 🍀 Everyone!

posted January 25
A MyEpilepsyTeam Member

I had a VNS out in and it only caused my anxiety to worsen and it caused me to have breathing problems whenever the stimulator was on. Everyones body is different but from my experience i would not recommend it as a first, second, or 3rd route of treatment.

posted January 22
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I had a Vagus Nerve Stimulator at one time. I didn’t have any luck. We saw no improvements in my seizures so I had another surgery and got the VNS removed. It also tickled my throat and would make me cough when it was running.

posted January 22 (edited)
A MyEpilepsyTeam Member

It was one of the best things I did. It helps with my recovery time, and even stops some of my seizures.

posted January 22
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