Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I had a grand mal seizure, at the age of 6 or 7. I had a horrible headache prior to my episode, but no aura. I was seizure free until age 12 or 13, when I experienced the same type of headache, followed by a grand mal seizure. I was put on Phenobarbital with Dilantin, which took for about 10 years. I experienced another grand mal seizure a few months later, while I was hospitalized for an appendectomy. I hadn't been given my epilepsy medication. I was put on Tegretol in my mid 20's. I didn't… read more

January 9, 2024
 · 
Reactions
Seizure Auras: What Do They Feel Like? Can You Stop One? Read Article...
A MyEpilepsyTeam Member

Dear, Helida and Jack I had epilepsy since age 5 involving auras, etc I am 62 I stick the old language for my comfort zone. I keep seeing phrases that I never heard before and I have to re-educate myself all over again.!! ericthom3

January 10, 2024
A MyEpilepsyTeam Member

Well I do have auras or old terminology for it. I get either audio problems or stomach problems or onset migraine.

May 29, 2024
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member generalized seizures are the full brain and the 2 types that are in that are grand mals and absence or as I grew up calling them petite mals. I've had them since I was 5. The way you wrote your comment above it sounded like only tonic clonic or grand mal were generalized which isn't the case.

June 13, 2024
A MyEpilepsyTeam Member

My auras always came with beginning of my period and always at the time of my menstrual cycle and it still continues to work that way today even with medications Tegretol and keppra. I’ve stopped Tegretol as it is responsible for my painful lupus induced scalp and great hair loss

June 1, 2024
A MyEpilepsyTeam Member

Thanks for the clarification Helida. ericthom3

January 15, 2024

Related Questions

View All
A MyEpilepsyTeam Member asked a question 💭