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SUDEP
A MyEpilepsyTeam Member asked a question πŸ’­

Does anyone know of epilepsy medication that is linked to SUDEP. Just wondering. Many thanks!

posted December 17, 2023
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A MyEpilepsyTeam Member

If you are at risk of SUDEP, then your neurologist/epileptologist might have prescribed a seizure stopper medication that is on your medical record. Do you like alone? If not, then is someone who you live with a health proxy who knows how to administer this medication? Or does this person at least know that if any of the SUDEP seizures lasts 5 minutes, then he/she needs to dial 911?

Here is a link to the Epilepsy Foundations page on everything you need to know about SUDEP: https://www.epilepsy.com/complications-risks/ea...

posted December 17, 2023
A MyEpilepsyTeam Member

It’s related to the seizure activity at night. I have refractory (uncontrolled)epilepsy. Mostly my grandmal are at night. I wear a mouth guard and and happy to wake up in the morning. 🌞

posted December 17, 2023
A MyEpilepsyTeam Member

CiaraSH Not sure as when I had a sz when I was on DILANTIN and Mysoline around 18 I was going to commit sudep but a friend came in just in time befor pulling trigger but after that never thought of it again till my wife died from cancer as grandkids came to my mind so I stopp BUT in the last 6 months been coming to my mind alot as not fun being alone when married 42 yrs,with someone. I saw my Neurologrey 1 mont ago and I told her so she put me on a Medicine to help not want to do that and also be seeing a special dr for this so have to see if it helps even tho I have a son and grandkids but not same seeing wife everyday as doing my best

posted December 17, 2023
A MyEpilepsyTeam Member

Nope. I'm pretty sure this is mainly due to uncontrolled epilepsy. Or the better answer is events due to uncontrolled epilepsy.

posted December 17, 2023

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