Hi, DannyBoy thanks for your support, one thing I do is make sure I take my phenytoin same time everyday, that helps feel stable with seizures. Take care.

Hi, DannyBoy I was on that dose of 600mg dose to start with, now I take 450mg daily with clonazepam + one citalapram, when they started to reduce it I was ill with seizures,but I have a VNS to stable my epilepsy, and I was OK till wearing hearing aids, I do feel better now, Take care, Thanks.

Hi Babs. I've been on Phenytoin for over 40yrs now and they can't get me off it. Every time they try my seizures come back again.
I'm currently on 600mg daily
Take care x

Hi, Marguerite, I can't ask for a change now cause its what my brain is used to plus when they tried to cut it down I was ill with seizures, but I am taking less since having a VNS, but I have to be careful cause it interacted with lots of medicines, Take care.