If You Know Everything You Know Now, Would You Still Have That Brain Surgery Today? | MyEpilepsyTeam

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If You Know Everything You Know Now, Would You Still Have That Brain Surgery Today?
A MyEpilepsyTeam Member asked a question 💭

For those of you who have had brain surgery, please first answer each of these questions (for each time you had brain surgery) before answering the main question:

1. When was your brain surgery?

2. What were you told prior to convinced you to have brain surgery?

3. What was/are your pros and cons in judging your brain surgery or surgeries?

4. Did one or more of them improve your quality of life?

posted November 6, 2023
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A MyEpilepsyTeam Member

1. April 21st 2023.

2. That it could reduce my seizures by up to 60% and we could “hopefully” manage the other 40% with the right medication “mix”.

3. Currently a 99% reduction in seizures.

4. YES!

posted November 6, 2023
A MyEpilepsyTeam Member

One last thing, my surgery was performed in Boston at Beth Israel Deaconess Medical Center in Boston. I could not recommend a better place because of the Dr.s experience and

posted November 10, 2023
A MyEpilepsyTeam Member

A big YES . I was up to any possibility of helping me be able to control my seizures better. I was told, that there wasn’t any guarantee that I would be seizure free. I was open to the possibility. And , no it didn’t do much with seizures control . But, it did get rid of my severe seizures.

Then the VNS came out. So I tried that treatment. When it didn’t work , my Dr. And I agreed, not to continue the treatment, when the Stimulator stopped working.

Then the DBS became approved in 2018 . I got my DBS done in 2022 . It’s been working well since. I still have seizures, but the have reduced a lot.

posted November 6, 2023
A MyEpilepsyTeam Member

I was the second in history in 1985 1986 to have brain surgery. 55% dead tissue blockages removed.

posted November 9, 2023
A MyEpilepsyTeam Member

1. When was your brain surgery?
November 13th 2018
2. What were you told prior to convinced you to have brain surgery?
I was told about it by my mom, but my friend Tony convinced me to get it.
3. What was/are your pros and cons in judging your brain surgery or surgeries?
During recovery I did lose my vision in the left eye for a while, but it's restored now. The only long term effect I have is short term memory loss.
4. Did one or more of them improve your quality of life?
It definitely has improved my life. I can drive, work full-time, I was able to move out, and I don't have to have my parents everywhere I go. I was also declared officially cured, and it's been almost five years since my last seizure.

posted November 6, 2023
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