How Many People Have A Vns And Do You Feel It Works For You At All? | MyEpilepsyTeam

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How Many People Have A Vns And Do You Feel It Works For You At All?
A MyEpilepsyTeam Member asked a question 💭
posted October 14, 2023
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A MyEpilepsyTeam Member

I have had a vns for about 15 years in the beginning i had a robot voice every time it turned on and i could always feel
it turn on but now my voice changes a little bit but i feel like the vns does nothing for me

posted October 19, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
That’s why I got rid of my VNS. The vibration made me cough and changed my voice whenever it turned on. It didn't help me with seizures either.

posted October 19, 2023
A MyEpilepsyTeam Member

I have a combination of a VNS and a DBS as they work together in my case. Yes, I do feel they benefit one another. The hope was to lower medication but at this point in time something isn't quite right. Will talk about it later.

posted October 17, 2023
A MyEpilepsyTeam Member

I had vns surgery just over one month ago and I feel it has improved my focal seizures I have temporal lobe epilepsy it is sore on throat for the first couple of weeks talking but I just tried my hardest not to and my speech has improved greatly hope this helps

posted October 17, 2023
A MyEpilepsyTeam Member

I have heard many patients having sore throats after the VNS. After I had the VNS the sore throat seemed to come about weekly and it is still taking place after other week just about. I have been keeping myself hydrated with water and also using organic cough drops as needed to avoid a lot of medication.

posted October 19, 2023
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