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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is There A Solution If The New Medication I Was Prescribed Isn't Covered By Insurance?

A MyEpilepsyTeam Member asked a question 💭
Colorado Springs, CO

So I'm currently on some different medications. Two of which, the Zonisamide and Depakote, I've been on for a couple years but the effectiveness of the medication has worn off and I've started having seizures again every week to every month. Just recently my neurologist has wanted to switch me to Xcopri and has talked about RNS while taking this medication but this medication isn't covered by my insurance at all. I've been trying to fill the prescription and Everytime I try, I get an error… read more

September 30, 2023
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , You can contact Vimpat’s manufacturer about their Patient Assistance Program or you could contact your local Epilepsy Foundation. At www.epilepsy.com you can look up your local Epilepsy Foundation. Or you can call your local Epilepsy Foundation & let them know about your situation & ask if they can help you. When I was first put on Vimpat in 2019 it didn’t have a generic but now it does. Have you tried the generic yet? I’m taking it now. If you have any questions feel free to ask me. Your friend in Texas, Becky

September 30, 2023
A MyEpilepsyTeam Member

Eden2, contact the company that manufactures Xcopri. The pharmaceutical companies say it in their advertisements all the time, and like ProudTX said, sometimes they will offer a steep discount. It’s worth a try!

September 30, 2023
A MyEpilepsyTeam Member

I'm having the same problem with the name brand vimpat.

September 30, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , I strongly recommend you contact your local Epilepsy Foundation & you’ll find their contact information at www.epilepsycoloradowyoming.org & on that site you’ll see what support groups & events they offer & what resources they offer. I strongly recommend you call them & let them know your situation & ask if there’s any way they can help you. They might have you fill out some paperwork first. They’re there to help us get our meds. I went a few years without insurance & one time I reached out to the manufacturer of Depakote & if I remember correctly, they provided me my Depakote free for a little while but all the manufacturer of my Trileptal did was give me a discount. Then when my current Neurologist started me on Vimpat in November 2019, they suggested I look into getting help from a charity or something like that because there wasn’t a generic available for Vimpat at the time. I don’t remember how I found out about it, but I called my local Epilepsy Foundation & told them my situation & they helped me. I think they put me on a program they have, where I paid $25 dollars a year & that included check-ups with their Neurologist but luckily my Neurologist & her office volunteer with the Epilepsy Foundation & so I got to keep the same Neurologist & I would call my local Epilepsy Foundation if I needed refills & they would mail it to me & if I had a message for the Neurologist, I had to call my local Epilepsy Foundation & leave the message with them. This program also included the blood work. So call your local Epilepsy Foundation & ask for help. Your friend in Texas, Becky

September 30, 2023
A MyEpilepsyTeam Member

I'm not sure if I'm helping with any information but I know there isn't a generic form of Xcopri yet and won't be for another 4 years or so. I would speak with my neurologist about it because I understand that I wouldn't be able to afford my medicine being that price without any insurance assistance. I'm on Vimpat and Xcopri and it hasn't been very long that I even started getting generics of Vimpat. New drugs have 7 year patents before an exact copy(generic) can be made. Hope this helps some and best of luck to you.

September 30, 2023

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